• How long did you feel like your health was not normal before being diagnosed with HL?

    Asked by RockTom on Monday, May 6, 2013

    How long did you feel like your health was not normal before being diagnosed with HL?

    I keep thinking back to before diagnoses, and can't really remember feeling that bad, or noticing anything wrong. I guess some cancers just pop up without showing the usual symptoms.

    7 Answers from the Community

    7 answers
    • bp440's Avatar

      My husband was getting more short of breath and fatigued over 3-4 months. We thought it was his heart since he had quadruple bypass two years earlier. Also blamed the fatigue on one of his medications. He started seeing his doctors when he noticed a lump in his neck. The shortness of breath was caused by the enlarged lymph nodes in the diaphragm area. I think your right, there are no straightforward symptoms.

      over 5 years ago
    • ddkk3's Avatar

      It was about a year for me. Especially toward the end of that year right before diagnosis, I never quite felt right. I kept saying that I wish I had a live in nurse or doctor because I always had a different issue!

      over 5 years ago
    • valpack13's Avatar

      In hindsight, I think I had night sweats a month or so before I was diagnosed with stage 4 HL. But at the time, I didn't think any thing of it because it was the summer. I only went to my PCP after I felt a lump on my neck. Other than the night sweats, I had not other symptoms.

      over 5 years ago
    • berly462005's Avatar

      I really didn't have any symptoms except a rash for 2-1/2 years and my neck swelled up. Later in between trying to find an answer I got the night sweats, fever, choking on food, and coughing. Those were really awful but once I started the chemo they got a lot better.

      over 5 years ago
    • outdoorboywa's Avatar

      The first time around, the only symptom I know of for me was the swollen nodes in my neck. The second time I was in grad school, so it is a bit hard to ferret out where fatigue might be coming from. I was skiing all winter and running a half marathon and didn't feel too bad. Again it was a slightly painful node in my neck that didn't go away after a round of antibiotics so I pushed for options and the ENT said a biopsy was reasonable with my history. Both were early stage with very few nodes involved. I would imagine location, spread, and total tumor mass all might have something to do with symptoms. I know for me, I feel like I don't have a good baseline anymore for what "feeling well" feels like.

      over 5 years ago
    • RockTom's Avatar

      Thanks everyone, as I sit and think about this, I still don't remember having anything stick out at me as a symptom. I appreciate your information.

      over 5 years ago
    • Outlier's Avatar


      May, 1987 was my 1st diagnosis of HL. I presented with a lump at the base of the right side of my neck. I may have had fatigue prior to diagnosis, however I did'nt attribute it to cancer.

      In 1989, I presented with fatigue. And the definite sense the HL had returned. It had.

      over 5 years ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy

    Read and answer more hodgkin disease questions.  Also, don't forget to check out our Hodgkin Disease page.