• Bug's Avatar

    How long did you have your port?

    Asked by Bug on Tuesday, July 9, 2019

    How long did you have your port?

    I'm sure I've seen this question before but didn't do very well when I searched for it. A friend was diagnosed with triple-negative breast cancer and had her last chemo on June 20. She asked her onc when she could have her port removed. He said next month (meaning July). That seemed a lot sooner than what I recall you folks saying. I was wondering if you'd refresh my memory. How long did you have your port? Thanks, everyone.

    18 Answers from the Community

    18 answers
    • GregP_WN's Avatar
      GregP_WN

      I kept mine for 15 years, I didn't want to let it go. Then 3 years later I was diagnosed for the 3rd time. Should have kept it a little longer.

      3 months ago
    • beachbum5817's Avatar
      beachbum5817

      I had mine in for a year and a half. The year part was due to the fact that I was getting Herceptin for a year I was too superstitious to get it removed immediately even though my oncologist said that I could. I decided to wait and have it removed 6 months later when I was getting my permanent implants done. My port had been put in by a vascular surgeon, so my plastic surgeon wouldn't/couldn't remove it. He had told me beforehand that he would get it all coordinated, but it turned out that he forgot. He made some calls, and the doctor was in the hospital, so it all worked out in the end.

      3 months ago
    • Carool's Avatar
      Carool

      Bug, I never had a port, but my friend who had Hodgkin’s five years ago had her port for a year and a half.

      3 months ago
    • IKickedIt's Avatar
      IKickedIt

      I had to wait about two months after chemo until I had my colonoscopy and ct-scan. Once they both came back clear, I got the thumbs up to have the port removed, which I immediately scheduled for the next month.

      3 months ago
    • po18guy's Avatar
      po18guy

      First port, a Bard Power Port, for seven years. No problems.
      Second port a "Vortex" port for Extracorporeal Photopheresis (ECP, a post-transplant GvHD treatment). It showed signs of dying after 1.5 years, but I was done with ECP anyway.

      3 months ago
    • CharHart's Avatar
      CharHart

      Had surgery December 26. The cancer was diagnosed as Triple Negative. Had a port installed in January; finished chemo in April; last radiation is tomorrow. My oncologist recommended I keep the port for a year. I absolutely agree, as I'm a "hard stick" and it usually takes 2-3 painful tries to draw blood.

      3 months ago
    • Kp2018's Avatar
      Kp2018

      I had mine for the duration of chemo plus a month. I was in favor of keeping it, but the oncologist and surgeon didn't like the risk of infection the "foreign item in my body" presented, especially since my immune system was weak after chemo. I had to take antibiotics before routine dental cleaning because the port was still there. Having it removed was super easy - just local anesthetic in the surgeon's office.

      3 months ago
    • myb's Avatar
      myb

      I had mine for 1 year which was 6 months of chemo and 6 months till had 2 clean scans at 3 months at Upenn.

      3 months ago
    • bruinjt's Avatar
      bruinjt

      I had my last chemo in September and I'm finally getting it taken out this Friday. (I'm having some "finishing touches" done to my breast reconstruction - I'm also TNBC - so the surgeon said while I was in there, he'd take it out.) I suggest not having it in for too long just because it's a pain, you always must have a port flush if they aren't constantly accessing it. And even with the numbing cream, it hurts when you're doing it only every 6 weeks as opposed to every few.

      3 months ago
    • TerriL's Avatar
      TerriL

      Once I was done with every three week blood draws while on Xeloda, I had it removed within two weeks. I didn't want to have to worry about getting it flushed every three months.

      3 months ago
    • coolteach51's Avatar
      coolteach51

      I had mine removed 3 months after chemo ended and 1 month after radiation ended. It was bothering me and my last flush created 102 degrees temp (mine required flushing every month). My oncologist agreed with my decision.

      3 months ago
    • cllinda's Avatar
      cllinda

      I had mine removed about 10 months after my last chemo. I wasn't in a hurry about it. So when I went for a check up, the doc suggested it and I got it done. It's no big deal.

      3 months ago
    • fiddler's Avatar
      fiddler

      I had TNBC and the port was taken out as soon as possible after the last infusion. The surgeon said too much scar tissue forms and infections can set in, too.

      3 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Hi Bug, I've had mine since July 2013. I've recently gone a couple of months without having it accessed ... I may have issues with it when I go to the doctor in early August ... but, until now, it has been a true blessing. I guess I'll keep it for a while, even on the outside chance that I don't have to go back to regular treatments.

      3 months ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Like LiveWithCancer I have had my chest port in for six years . I get it flushed every five weeks and have had no issues with it. My doctor would have removed my port three months post frontline chemo, but I have elected to keep it in.

      3 months ago
    • kalindria's Avatar
      kalindria

      I didn't have mine removed when my oncologist said I could simply because of scheduling issues but then I had a recurrence and was glad to still have it.

      3 months ago
    • Bengal's Avatar
      Bengal

      I was supposed to keep mine 1 year after completion of chemo "just in case", always reassuring to hear. That would have been this month. I asked to have it removed months early because it was driving me crazy. Felt like it was trying to crawl itself out on my chest! Surgeon was cooperative and took it out in February.

      3 months ago
    • JaneA's Avatar
      JaneA

      I still have mine almost 5 years later. I was Stage IV and am still followed every 3 months - so the port is accessed for lab work and to inject the dye for scans. It doesn't bother me at all. Get it flushed every 6-8 weeks. I think that both me and my oncologist don't want to "jinx" my NED status.

      3 months ago

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