• Bug's Avatar

    How long did you have your port?

    Asked by Bug on Tuesday, July 9, 2019

    How long did you have your port?

    I'm sure I've seen this question before but didn't do very well when I searched for it. A friend was diagnosed with triple-negative breast cancer and had her last chemo on June 20. She asked her onc when she could have her port removed. He said next month (meaning July). That seemed a lot sooner than what I recall you folks saying. I was wondering if you'd refresh my memory. How long did you have your port? Thanks, everyone.

    16 Answers from the Community

    16 answers
    • GregP_WN's Avatar
      GregP_WN

      I kept mine for 15 years, I didn't want to let it go. Then 3 years later I was diagnosed for the 3rd time. Should have kept it a little longer.

      9 days ago
    • beachbum5817's Avatar
      beachbum5817

      I had mine in for a year and a half. The year part was due to the fact that I was getting Herceptin for a year I was too superstitious to get it removed immediately even though my oncologist said that I could. I decided to wait and have it removed 6 months later when I was getting my permanent implants done. My port had been put in by a vascular surgeon, so my plastic surgeon wouldn't/couldn't remove it. He had told me beforehand that he would get it all coordinated, but it turned out that he forgot. He made some calls, and the doctor was in the hospital, so it all worked out in the end.

      9 days ago
    • Carool's Avatar
      Carool

      Bug, I never had a port, but my friend who had Hodgkin’s five years ago had her port for a year and a half.

      9 days ago
    • IKickedIt's Avatar
      IKickedIt

      I had to wait about two months after chemo until I had my colonoscopy and ct-scan. Once they both came back clear, I got the thumbs up to have the port removed, which I immediately scheduled for the next month.

      9 days ago
    • po18guy's Avatar
      po18guy

      First port, a Bard Power Port, for seven years. No problems.
      Second port a "Vortex" port for Extracorporeal Photopheresis (ECP, a post-transplant GvHD treatment). It showed signs of dying after 1.5 years, but I was done with ECP anyway.

      9 days ago
    • CharHart's Avatar
      CharHart

      Had surgery December 26. The cancer was diagnosed as Triple Negative. Had a port installed in January; finished chemo in April; last radiation is tomorrow. My oncologist recommended I keep the port for a year. I absolutely agree, as I'm a "hard stick" and it usually takes 2-3 painful tries to draw blood.

      9 days ago
    • Kp2018's Avatar
      Kp2018

      I had mine for the duration of chemo plus a month. I was in favor of keeping it, but the oncologist and surgeon didn't like the risk of infection the "foreign item in my body" presented, especially since my immune system was weak after chemo. I had to take antibiotics before routine dental cleaning because the port was still there. Having it removed was super easy - just local anesthetic in the surgeon's office.

      9 days ago
    • myb's Avatar
      myb

      I had mine for 1 year which was 6 months of chemo and 6 months till had 2 clean scans at 3 months at Upenn.

      9 days ago
    • bruinjt's Avatar
      bruinjt

      I had my last chemo in September and I'm finally getting it taken out this Friday. (I'm having some "finishing touches" done to my breast reconstruction - I'm also TNBC - so the surgeon said while I was in there, he'd take it out.) I suggest not having it in for too long just because it's a pain, you always must have a port flush if they aren't constantly accessing it. And even with the numbing cream, it hurts when you're doing it only every 6 weeks as opposed to every few.

      9 days ago
    • TerriL's Avatar
      TerriL

      Once I was done with every three week blood draws while on Xeloda, I had it removed within two weeks. I didn't want to have to worry about getting it flushed every three months.

      9 days ago
    • coolteach51's Avatar
      coolteach51

      I had mine removed 3 months after chemo ended and 1 month after radiation ended. It was bothering me and my last flush created 102 degrees temp (mine required flushing every month). My oncologist agreed with my decision.

      9 days ago
    • cllinda's Avatar
      cllinda

      I had mine removed about 10 months after my last chemo. I wasn't in a hurry about it. So when I went for a check up, the doc suggested it and I got it done. It's no big deal.

      8 days ago
    • fiddler's Avatar
      fiddler

      I had TNBC and the port was taken out as soon as possible after the last infusion. The surgeon said too much scar tissue forms and infections can set in, too.

      8 days ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Hi Bug, I've had mine since July 2013. I've recently gone a couple of months without having it accessed ... I may have issues with it when I go to the doctor in early August ... but, until now, it has been a true blessing. I guess I'll keep it for a while, even on the outside chance that I don't have to go back to regular treatments.

      6 days ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Like LiveWithCancer I have had my chest port in for six years . I get it flushed every five weeks and have had no issues with it. My doctor would have removed my port three months post frontline chemo, but I have elected to keep it in.

      6 days ago
    • kalindria's Avatar
      kalindria

      I didn't have mine removed when my oncologist said I could simply because of scheduling issues but then I had a recurrence and was glad to still have it.

      6 days ago

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