• How long does it take for the cytomel, T4 hormone to start to kick in. I feel just the same as before surgery....fatigued....ugh!

    Asked by Grammyof3 on Monday, December 30, 2013

    How long does it take for the cytomel, T4 hormone to start to kick in. I feel just the same as before surgery....fatigued....ugh!

    I am also experiencing acid indigestion and a feeling of thickness under my scar.....like food is stuck there or something. I swallow okay but am still sticking to softer foods. Knowing someone else has experienced this will be comforting! Losing a thyroid is quite emotional too! The surgeon tells me he got all of the cancer, 1.7 cm on right and two .7 cm spots on my left lobe. but I am still worried there is more. Wll be having RAI treatment in 4-5 weeks.

    4 Answers from the Community

    4 answers
    • kschmitz's Avatar

      Dear Grammyof3- I unfortunately know exactly what you are talking about and I had a slow increase in my level of fatigue that lead up until the RAI treatment, and then it took another 4-6 weeks of being on synthroid for me to start feeling like my levels were going back up again. You can try some raw apple cider vinegar before meals to help with the indigestion (start with 1 tsp of ACV in water and work up to 2 Tbsp as needed). It doesn't taste great- but helps with raising your stomach acid naturally. Maybe try some wild orange essential oils for the emotions- that really helped me a lot! Hang in there, we are here for you!!!

      about 7 years ago
    • Pixelated4u's Avatar

      I'm sorry to hear you have been going through this. It's quite a process and is very emotional and exhausting. I have been on Synthroid (alternative to cytomel). Not sure how different the process is with Cytomel, but for me it was a lot of trial and error to see how I felt after having my thyroid removed. My doc gave me certain dosages and then checked up on me through bloodwork. I recall feeling lousy post surgery and up to a year after surgery. Finally, he was able to figure out the correct dosage. Perhaps call the doctor up to tell him how you are feeling? When I go in for endo appointments, I normally tell the doc how my energy levels have been and he'll order a test if need be. Sometimes he'll correct the dosage if needed to see how I feel.

      Quite recently, I had a secondary surgery in 2012 - after which my levels were a mess and I was suffering from severe fatigue. I wasn't taking multi-vitamins on a regular basis - so I tried something called "Alive" (http://www.vitaminshoppe.com/p/nature-way-alive-womens-energy-multivitamin-high-potency-50-tablets/nw-1281#.UsD-1fRDurY). It actually gave me a nice burst of energy throughout my work day. It definitely helps. Sometimes the fatigue can come from other things.

      I wish you the best of luck with RAI. Are you going hypo or doing thyrogen injections and are you going on the low iodine diet?

      I have been through a lot of this process - 1st surgery (complete thyroidectomy), RAI, scans, 2nd surgery (Modified radical neck dissection due to occurrence), etc.. Please feel free to reach out to me if you have any specific questions about anything. Please take care and I wish you the best of luck fighting this. You can do it!

      about 7 years ago
    • donnatu9122's Avatar

      It took several months for me to eat more of a "normal" diet. You would think mashed potatoes would be easy to eat. I still can not eat them without a lot of gravy. My surgery was 1/22/13. It will get easier for you with time.

      about 7 years ago
    • jollymon's Avatar
      jollymon (Best Answer!)

      Your body has been thru alot, so give it time to adjust, the Cytomel will start to help but just realize that you have lost a very important organ in your body and it has to adjust.
      I also have had a problem with a "thickness" under where my thyroid used to be and swallowing. My gastro doctor diagnosed it as "dysphasia" which means my esophagus isn't behaving normally. She says your esophagus is actually supposed to "squeeze and milk" the food down to your stomach, well mine only gets there via gravity and drink.
      If you are having I-131 then follow that no iodine diet to the letter for good results. I have had 2 thyroid scans since my surgery and I-131 and no thyroid tissue has shown up to date. Good luck!

      about 7 years ago

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