My journey moved fairly quickly....I had help with scheduling appts and getting test results....we knew one of the docs where I had my biopsies and he called me the night of MRI to give results and got me in the next day for 2nd round of biopsies....also one surgeon I interviewed got me into the oncologist the same week I saw surgeon....That said.....I had bilat 4 weeks after Dx.....then started chemo 3 weeks later.....6 rounds of chemo every 3 weeks....so that brought me to 5 months post Dx, then started 3 weeks later...by the time I finished rads (I had a lot of lymph node involvement), I was almost 7 months post Dx.....about 6 weeks later I had my ooph.......almost 13 months post bilat, I had the exchange surgery swapping out y TE for silicone implants.....So for the initial part of the journey, I would say 14 months.....But during all this time, life continued to go on....I was still wife, mom, and worked full time!!! of course I took time off and had help with meals etc. Good luck with your nipple recon tomorrow....
Breast Cancer Questions
How long has your journey been?
Asked by MarS676 on Sunday, April 14, 2013
How long has your journey been?
Tomorrow I will undergo phase 2 of my breast reconstruction, this will hopefully be the last of my surgeries in this journey that I call Breast Cancer. I realized today what a whirlwind my life has been in the last 9 months, yes its only been 9 months since I was diagnosed with BC! I've had 8 rounds of chemo, a bilateral mastectomy, DIEP Reconstruction and tomorrow Nipple Reconstruction. I chose not to have radiation because I had clear lymph nodes and didn't want to wait 6 months after radiation for reconstruction. Thinking about my journey I wonder how long did it take others to get their lives back after cancer, how long was your journey from diagnosis to last cancer related procedure?
9 Answers from the Community
No radiation is good news, one less destructive process and the sooner you will be well again. Hope your surgery goes well tomorrow. My journey has not stopped after 8 years. The actual treatment from diagnosis to starting chemo took 3 months, chemo and surgeries were 6 months, radiation a, month and a half. Then came the 5 years of medication. The side effects are still with me.
I had just enjoyed about 4 years of not going to the onc when I was diagnosed with my second b/c. I imagine now that I'm a two timer I will be going for at least yearly checkups for some time now.
I am interested in how your DIEP flap has gone. I chose to postpone mine until October, but am planning to do it then. Good luck w/your final stage tomorrow. :-)
Dad started with lung cancer in December 2009, went through the surgery and chemo, beat that cancer, then in 2012 on a follow up scan, they discovered pancreatic cancer that spread to his liver. So there was a very busy period, followed by a cancer vacation where quality of life was back to normal, then back to another phase of the journey.
My journey was only six months from DX to completion. I had lumpectomy, 4x chemo, and accelerated rads (3 weeks rather than 6 1/2). The waiting for test results took the longest. I know many others have had a much longer and more difficult journey. Good luck with your recon!
I'm 22 months from diagnosis and besides taking an AI for about 6-7 more years, I may be having another surgery. My last one was in December. I had a unilateral mastectomy and it takes more work for symmetry. I didn't have chemo and had 7 weeks radiation which ended less than 3 months after diagnosis.So all of that went fairly quickly. I'm having my first pet scan in a couple of months because I have nodules in several places they're watching. Initial diagnosis is not cancer but they have to watch them. These were found through lung x-ray, then ct scan, then thyroid ultrasound all because of 3 consecutive colds with a bad cough. I guess a lot of people have nodules and are found by accident. But once they find them, they watch them, so sometimes I feel the journey won't really end! I accept it as part of my life now. However I now have a new -normal life!
Good luck with your surgery!
My Journey started in November 2011 and went as follows:
Diagnosis was 11/11/11
Surgery was 12/5/11
Scans were 12/19/11
1st Appointment with Oncologist was 12/23/11
Port placement was 12/29/11
Chemo was from 1/5/12 to 4/12/12
Radiation was from 4/30/12 to 6/23/12
Started Arimidex on 6/30/12
I will have follow-up Scans on May 3, 2013 and will see my Oncologist on May 10.
After that, I will keep the regular follow-up appoinments and be on alert for any changes
in my body. I know that I will never be the same person that I was before but that is not a bad thing as I now have a better appreciation of family, friends and life itself. I wish you the best.
DX - January 6, 2012
Bilateral Mastectomy with Immediate Reconstruction with Implants - February 3, 2012
Chemo Started - April 20, 2012
Chemo Ended - August 17, 2012
Clear Scans and started living with NED - Spetember 6, 2012
Tamoxifen Started - September 2012
Tamoxifen Stopped - November 2012
Left Implant Replacement - November 1, 2012
Hospitalization For Cellulitis Left Breast - February 26, 2013
Partial Knee Replacement Due to Necrosis From Chemo - May 7, 2013
I decided against any type of nipple/areola reconstruction, so I am hoping that after May 7, I am done. However, it seems that Lefty is being obnoxious again and might need to be replaced again...
Hi! In November 2012 found my lump (thanksgiving day!) January 2013 Lumpectomy; April 2013 Bi-lateral Mastectomy w/reconstruction; June 2012 Port in 2 weeks later started Chemo. November 2013 finished chemo; December 2013 Expanders taken out implants put in; I also chose not to do radiation with everything clear. Still have not done nipple reconstruction unsure what I want to do. The getting my life back after cancer. It is and it's not, for me just always there now I don't dwell on it, but it changes you I guess I'd say. And praying nothing comes back.