• How long to get back to "normal" after thrombocytopenic purpura and related new symptoms?

    Asked by Joy535 on Friday, April 26, 2013

    How long to get back to "normal" after thrombocytopenic purpura and related new symptoms?

    Has anyone had a respite from chemo after a bad reaction? Will my body ever get back to "normal" so I can continue chemo, and how long might it take? It's been 3 weeks since my last infusion of Gemzar and 2 weeks since I stopped taking Xeloda because of a very bad reaction.

    3 Answers from the Community

    • FreeBird's Avatar
      FreeBird

      After he stopped his chemo with Gemzar at the time he had low blood platelets, my dad's rash disappeared and the swelling went down within 2 weeks. It's difficult to say exactly what's going on with you to know if that's what's going on with you. Do you still have that redness?

      over 4 years ago
    • Joy535's Avatar
      Joy535

      FreeBird, thanks for the response. Yes, I still have the redness and lots of peeling on my feet. The places where the purpura broke out everywhere where I had ever had any injury or problem in my body is slowly getting better, too. I seem to be getting lots of other symptoms that I've never had before or that had subsided. For example mouth sores/changes, taste changes, hair falling out again, etc. It's been three weeks since I had any Gemzar and since I stopped taking Xeloda. I have another appointment in 2 weeks to re-evaluate and probably start Gemzar and Oxilplatin infusions if I'm over all of these reactions and my blood counts are better.

      I think both my husband and I were depressed (the first time we've admitted it or said the word out loud)... Today was probably the best day I've had in a month or more; it felt good. I can see life in a more positive light; and I can accept the fact that I "can only do what I can do", as my Mother used to tell me. There's no point in trying to "fix" my life and, especially not any thing else. Thanks again for letting me vent, and for helping me by telling me your experiences.

      over 4 years ago
    • FreeBird's Avatar
      FreeBird

      Vent anytime! You help people by sharing your experiences and letting them know they're not alone in what they go through. It's good to see you're feeling a little better.

      That really is a challenge when you have mouth sores and taste changes, where food becomes less enjoyable. I hope you're able to eat and get some extra protein in to help your body rebuild.

      over 4 years ago

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