• How many doses should I expect in my RAI treatment? How many days should I expect to be "in exile" as it were?

    Asked by tak197 on Tuesday, February 28, 2012

    How many doses should I expect in my RAI treatment? How many days should I expect to be "in exile" as it were?

    More or less, I want to know what other people's experiences have been. I know that I have to expect one low dose to do the full body scan, but then I have the increased doses, but how many is normal? Also, what about side effects? For how long am I going to be separating myself from my family with their healthy thyroids?

    4 Answers from the Community

    4 answers
    • SMT4's Avatar

      My experience was one dose 3 days in hospital nausea yucky, staying on iodine free food. Had to take two showers daily first 3 days. Went home shower daily, no tastebuds for about 30 days, only isolated for a total of 2 weeks. They say 7 days depending on levels. Went 1 week later for scan. Stay on top of things because sometimes if normal they won't say anything. Best advice I could give is get known with your doctor and ask lots of questions.

      over 4 years ago
    • Monti's Avatar

      I'm currently awaiting my I-131 treatment within the next few weeks. Unfortunately my radiation had been put on hold due to the shortage of Thyrogen. From what my doctors have told me, anyone receiving a dose under 30mci is usually not required to stay in the hospital for their isolation, but have to adhere to precautions usually for 3-7 days (depending on the dose). An iodine free diet for 1 week before and through the end of treatment is normal. It's been suggested I invest in disposable utensils, paper plates, etc to reduce exposure to others.
      I'd also suggest checking out ThyCa (Thyroid Cancer
      Survivors' Assoc.) at http://www.thyca.org/ they have a lot of resources and advice, including a free low iodine cookbook you can download.

      over 4 years ago
    • pinkchickb's Avatar

      It depends on your dose. I was in isolation for 3 days but at home. I was given the lowest dose and was able to share the house with my son and dog. Had to use a different bathroom, though. Listen to what your doctor tells you. Mine had me sucking on lemons and lemon candy as well and it worked with not having any problems with my salivary glands. I had no side-effects.
      The thyca website is the BEST! The ACS also has a program where you can be paired with a survivor who helps you. My surgery was over 1 1/2 years ago and I am still friends with my peer.

      over 4 years ago
    • katiecakes' Avatar

      I had one dose and was allowed to go home, but stay in isolation on the 2nd floor for 3 days. Fingers crossed, it should all be wiped out in one dose

      about 4 years ago

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