• How often does the thought of recurrence cross your mind?

    Asked by UpandUp on Tuesday, August 6, 2019

    How often does the thought of recurrence cross your mind?

    Do you think about it or worry about it every day?
    Weekly, Monthly, never?

    I am out of treatments now but I am constantly having anxiety and almost panic attacks at times worrying about it coming back. Just me? Is this normal?

    15 Answers from the Community

    15 answers
    • Bengal's Avatar
      Bengal

      This is normal. I struggle to control anxiety every day. My panic attacks feel like a wave of despair overwhelming me. I am working on learning breathing and mindfulness techniques to control my thoughts and steer them elsewhere. Sometimes successfully, sometimes not. But you are certainly not alone in this.

      15 days ago
    • GregP_WN's Avatar
      GregP_WN

      I think about it maybe weekly, but worry about it? Maybe a couple of times a year, when I have an issue that could be #4. Other than that I do not worry about it. I taught myself years ago that if there is nothing I can do about a situation, then do not worry about it. It's a waste of time, energy, and peace of mind. It's hard to do, but once you teach yourself this you will be much happier and much more at peace.

      15 days ago
    • MichaelDicleLS's Avatar
      MichaelDicleLS

      I haven't gotten far enough through this one to be worrying about a recurrence. But, I have to admit the thought has crossed my mind that this is all for nothing if I wake up one morning 2 years from now and it has returned.

      15 days ago
    • aeasghMX's Avatar
      aeasghMX

      After finishing chemo I am almost done with treatments, I have thought about it but not worried about it. I do have to say that when I think about it possibly coming back all I can think about is the XXX I've been through with chemo and I sure don't want to do it again.

      15 days ago
    • Bengal's Avatar
      Bengal

      You've been at this a lot longer than me, Greg. I'm a relative newbie at this game. I sure hope I can get to the point where I can share your peace of mind. Wouldn't that be wonderful? And, aeasghMX I feel the same way. I never want to have to go through the ordeal of treatment again - ever. The first time was bad but I went through it in a dazed, surreal state. I 'm afraid, now knowing what is ahead for me, a repeat would be harder.

      15 days ago
    • Created07's Avatar
      Created07

      I don,t think I will ever fully trust my body again. But there is a warrior spirit you gain with your first cancer that remains with you for the remainder of your life. After the first cancer in 2011, the next and the next..both in 2014. In 2016 came the worst(so far)...non-hodgkins lymphoma. That one was scary and I found it myself just putting lotion one night. Large lymph nodes behind my ears. This is the positive side of not trusting your body. I know I Can be terrified again, but it will take a lot, because(with God's help and Wonderful doctors) I am a true warrior. We know how to fight and we have won so many times, I Know we can again if we have to. I pray with my whole heart that this is your only battle. But if another comes along, you are ready for the challenge. You have had a lot of training.

      15 days ago
    • Bengal's Avatar
      Bengal

      "A lot of training." I love that. Yes, we do get that .

      15 days ago
    • Bengal's Avatar
      Bengal

      UpandUp, does the facility where you are getting your treatment provide counselling services? If so, it can be a big help at, not eliminating anxiety, but teaching you how to manage it.

      15 days ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I'm almost 7 years out. Usually I'll think about it when it comes time for my recheck. Or if I don't feel well and it's something that COULD be problematic. I'll worry for a few days until the issue resolves itself.

      15 days ago
    • TallBald's Avatar
      TallBald

      I have a friend that refers to it as 'the cloud of cancer' It kinda always right there, in the background. I've had melanoma and prostate cancer. The only real time i get anxious is during my routine check ups and waiting for blood work to come back. Otherwise,I don't think about it too much. Just keep up on your regular dr. visits

      14 days ago
    • Kylerem's Avatar
      Kylerem

      I just finished treatment in March so I have to say I do still think about it every day at some point. I try and keep busy-work, friends, exercise-in order to distract myself from these thoughts. I’m hoping the further past treatment I get the less I will think about it

      14 days ago
    • missinack16's Avatar
      missinack16

      I was diagnosed with an aggressive melanoma 17 years ago yesterday! and I still think about it! I wear sunscreen every day, summer, fall, winter, spring on any part of skin that is exposed to the sun. I try to stay out of the sun between 10:00 - 4:00, which in the summer is close to impossible! I wear SPF clothing just about every day, including a hat. The beach is a nightmare, swim suits are not practical, but there are a few with SPF designation so I will wear those with lots of sunscreen! Trick to sunscreen is reapplying. I am not always good about that, but I am getting better. I still have anxiety leading up to my yearly check=up and if I find something that looks suspicious on me I quickly get in to see my doc. I think once you have heard those words, "you have cancer", your mind never forgets it and you do whatever it takes to keep it far, far away!

      14 days ago
    • cllinda's Avatar
      cllinda

      In the beginning, after treatments were over, I thought a lot of the chance it would come back. But seven years later, I am too busy with my granddaughters to worry about it.

      14 days ago
    • mom2two's Avatar
      mom2two

      I also am out of treatment but still in a clinical trial for about 31/2 yrs now and it will last for 5. I do think about recurrence every now and then, but really try not to let my mind go there. I try to focus on whats ahead in my life and all I still want to do. :)

      13 days ago
    • IKickedIt's Avatar
      IKickedIt

      I'm more than 7 years out and the thought of a recurrence rarely crosses my mind, so I don't worry about it either. But, it took me quite some time to get to this point.

      I am very vigilant about keeping up with my scans and do whatever the doctor recommends. I did, however, decide to cut my ties with my oncologist. He was the best, but the anxiety leading up to my annual check-up was very upsetting (even more than my colonoscopy, which I actually look forward to). He had told me I didn't have to continue with annual visits after 5 years, so after my 5th year, I decided to stop going. I am fortunate, however, to have had a cancer diagnosis which the doctors feel has been completely resolved and that I am cancer-free.

      I have more survivor's guilt than survivor's worry, but I am also not a worrier by nature.

      13 days ago

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