• How you survive to be on a chemo(oral) for rest of your life,how is to live with cancer rest of your life?

    Asked by angimary on Monday, March 30, 2015

    How you survive to be on a chemo(oral) for rest of your life,how is to live with cancer rest of your life?

    I don't think I want to live like that...I think it would be my only option soon...I don't know,it is already hard enough now,I don't think I will have more strengh to keep up with it :(((

    28 Answers from the Community

    28 answers
    • Shawnta's Avatar
      Shawnta

      I take Tamoxifen and will for 10 years. It sux but sometimes you have to do what you kinda do. Best of luck!!

      about 5 years ago
    • angimary's Avatar
      angimary

      Shawnta does it has same side effects?

      about 5 years ago
    • Shawnta's Avatar
      Shawnta

      It is a hormone blocker. I do not have any side effects.

      about 5 years ago
    • Shawnta's Avatar
      Shawnta

      I have been taking it about 4 months now.

      about 5 years ago
    • angimary's Avatar
      angimary

      Thank you Shawnta xoxoxo

      about 5 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I have lung cancer. I guess I will always have lung cancer... I go every two weeks for a treatment. And, I find myself resenting having to go. But, then I remember that those treatments are the reason I am still alive and I lose some of that resentment. I feel good on my treatment and I am able to actually live my life. I will be happy to continue treatments for as long as that is the case.

      I pray for you, angimary. You're young. I hate to see you want to give up!

      about 5 years ago
    • MoveIt2012's Avatar
      MoveIt2012

      It can be really disheartening sometimes but fight it! Tamoxifen hasn't been bad for me although I'm more moody and have gained a little weight but I did loose 50 pounds doing chemo. Don't know about oral chemo. You can do this you have every reason to keep up the fight. Hugs prayers and strength to you friend.

      about 5 years ago
    • BarbarainBham's Avatar
      BarbarainBham

      I've taken oral chemo pill (Gleevec) for almost two years, and I've had very few side effects---nausea about 5 times in two years. What chemo pill are you taking?

      Have you talked to your doctor about how you're feeling? He may need to give you an antidepressant. Wishing you the best.

      about 5 years ago
    • Fredcat's Avatar
      Fredcat

      I have been on Tamoxifen since November and plan on being on it for the next 5 -10 years. I have had minimal side effects.

      I think you have to concentrate on doing the things that you enjoy. The most important thing for me is to give myself the chance to be here in 5 - 10 years. I look at that pill each morning as a lifeline. It is helping me survive.

      Stay strong. Best of luck in your journey.

      about 5 years ago
    • ChildOfGod4570's Avatar
      ChildOfGod4570

      Now are you talking about a chemo pill or a hormone blocker? I can't say I know about the chemo pill, but I do know about Tamoxifen since I've been on it since late January 2014. The only real side effects I have from it are hot flashes I keep under control with popsicles or ice chips; and I have gained a little around the middle. That has leveled off now thank God. HUGS and God bless.

      about 5 years ago
    • Mikilog's Avatar
      Mikilog

      Hi,
      I do not take tamoxifen but I have been on anastrazole since sept. 6th 2013, yes I have S.E. But they are tolerable compared to what would happen if I was not taking this drug. Since 2013 I have been on a family vacation to the upper peninsula of michagin(GORGEOUS),I have enjoyed the birth of one beautiful granddaughter last month and I have another grandchild coming in August.
      I would stay on chemo for the next 30 years just to have these expieriencecs!!!!!!!!!
      Life is awesome,stay positive there is so much to live for!
      Good luck.

      about 5 years ago
    • cam32505's Avatar
      cam32505

      My mother was on a chemo pill (Gleevec) for the last 10 years of her life. Before that, there was no treatment for leukemia. She was elderly, so bone marrow transplant was not an option.

      about 5 years ago
    • angimary's Avatar
      angimary

      I am not taking any pill yet,I am still undergoing Treatment right now,but doc told me my future plan & that's why I wanna know what to expect :(((
      Thank you all for being here for me,hugs to you all xoxoxo

      about 5 years ago
    • baridirects' Avatar
      baridirects

      I have been living with metastatic breast cancer to the bone for a year now, being managed with three different medications (Femara, which is a daily pill, and Faslodex and Xgeva, which are monthly injections). While most medications have some side effects, and these are no different, I continue to do pretty much whatever I want to...I go to the gym 6 days a week, I perform with both a chorus and a quartet, I teach art, and I'm just about to start a new full time job. There are thousands of us out here who are, despite treatment, fully engaged in their lives. There's no reason to believe that you will have a substantially different experience. If you do get side effects, you learn to cope with them, and for many issues, your oncologist can help you minimize or eliminate them.

      What's very important here is that you don't allow the cancer to define who you are, and you don't spend a lot of time or energy dwelling on it. Strive to live your life to the fullest DESPITE your condition, and seek out the joy in every day. The unknown is scary, there's no doubt, but I think you'll find that the reality of long-term treatment is not nearly as bad as what your imagination may be telling you.

      Sending you energy for courage and peace-

      Namaste,
      Christine

      about 5 years ago
    • MoveIt2012's Avatar
      MoveIt2012

      Oh man Christine you are making me feel so very lazy :) Thank you for reminding me that I too can get off it and live a full and satisfying life.

      about 5 years ago
    • angimary's Avatar
      angimary

      Thank you Christine your post is really helpful xoxoxo
      I can't enjoy my life now,'cause everything makes me sick,I don't want to live like a vegetable all my life :(((

      about 5 years ago
    • ticklingcancer's Avatar
      ticklingcancer

      I have a friend that has been on a chemo pill for almost 5 years now for breast cancer and has zero side effects. I've talked to so many people that have told me the same thing. One being an Oncology Nurse. I bet you get the same results. Stay Strong My Friend.

      about 5 years ago
    • BarbarainBham's Avatar
      BarbarainBham

      Angimary, if you find out the name of the chemo pill you will be taking, we can be more specific about side effects. I wouldn't think any pill would be nearly as severe as the IV chemo you take now, in case that's what you fear.

      about 5 years ago
    • Kathy1's Avatar
      Kathy1

      I was on a chemo pill for almost two years. I'd ask yur onco what pill and its side effects. I found the pill had some side effects like nausea once in awhile, fatigue, hair changes, etc. It was milder than chemo infusions. But that could be different based on what you are put on. So sorry angrimary sure hope this is something doable for you.

      about 5 years ago
    • Lindy's Avatar
      Lindy

      Dear one I wish I had magic answers but I don't. You have my deepest concern & affection to bolster your beautiful nature.

      about 5 years ago
    • MyahsMom's Avatar
      MyahsMom

      Angimary, I was on Femara for five years. After five years they have put me on Tamoxifen. Now I am having tingling and numbness in my feet which my onco doc thinks may be a side effect of the chemo drugs. Well, at least I am still alive. I just have to LIVE with it. I had concerns about the meds too. I lost my husband to lung cancer 4-1/2 yrs. ago but his cancer was so advanced when found there was nothing they could do for him. Be thankful that you are alive and live each day to the fullest.

      about 5 years ago
    • angimary's Avatar
      angimary

      I just want to be able to take care of myself & my son,if somebody has to take care of me,I know it will kill me more than cancer :((( right now I can do things a little,not fully able to,it's already kills me that I have to be depended on someone :((( I don't know,you can call me crazy,but it's a way I am :((

      about 5 years ago
    • Lindy's Avatar
      Lindy

      Caring for you allows those who love you a chance to put love into action. It is a gift that they cherish in the giving. I understand as I am an independent old girl but I know my time is coming. I pray for a pretty shade of duck tape to make it easier on my girls.

      about 5 years ago
    • angimary's Avatar
      angimary

      Hugs to all of you,thank you all for being here for me,you all are huge help xoxoxo

      about 5 years ago
    • MedAssist's Avatar
      MedAssist

      All cancers and treatments are different.
      You will not get your answer here. I suggest going to your oncologist. I have to take chemo for life every day. I choose life. I also work in healthcare, we are very lucky to live in a place where treatment is available. ♡ best wishes.

      almost 4 years ago
    • BarbarainBham's Avatar
      BarbarainBham

      Angimary, how are you doing? I can't believe it's been a year since we wrote this post!

      almost 4 years ago
    • angimary's Avatar
      angimary

      I am doing okay I think,still alive...
      How are you?

      almost 4 years ago
    • BarbarainBham's Avatar
      BarbarainBham

      I've been taking a chemo pill for five years now, and my cancer is stable. What's actually worse are the back problems I've had have almost made me where I can't walk or do much. I'm still kicking though!!

      about 2 years ago

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