Hello, I have not been on this site in months. Just took a breather. I know you have many questions. I understand. Smile. One thing I have learned on this journey is that there are no two thumb prints alike and one day at a time. Have they visited with you on a course of treatment? How are you doing?
Non-Small Cell, Lung Cancer Questions
Asked by lonestarfwg on Saturday, May 25, 2013
I understand I have this happening to me ...Looking for others also with this,need some answers as to what helps with the pain etc..
3 Answers from the Community
Welcome to WhatNext, you will find the combined knowledge of this site awesome. The people are here so supportive, and it is a comfort to know you are not the only with these issues or going through your journey alone. Once you ask more specific questions we can give you targeted answers. You can bowers previously asked and answered questions by topic by clicking on the "questions" section on top of your screen - then search by topic.
Another great resource for answering questions and issues that come up is your oncology team. They know you and your case the best, and can give you answers and suggestions for treating issues as they come up. Remember to get contact info (I communicate with my team mostly by e-mail, but we we do phone each other between visits) so you can ask follow up questions after each visit.
Remember there are no stupid questions, and keep asking understand what's going on.
Hello, I am an oncology nurse and maybe I can give you some answers until another with first hand experience is able to reply. HOA is also known as PDP or Pachydermoperiostosis because it has a tendency to present with thickened skin that folds on itself. There are familial/hereditary or idiopathic/unknown origin forms. The disease tends to affect males more than women at a 7:1 rate. It involves clubbing of fingers and toes (that E.T. look) and periostitis which is inflammation of the connective tissues at the long bones of the upper and lower extremities which make for painful swollen joints. There has been a few drugs that have helped with the pain management associated with this disease. Biphosphonates like Aridia and Actonel, Vitamin A in a acidic form like a retinoid, NSAIDS and corticosteroids, Tamoxifen Citrate the anti-estrogen drug, and Colchecine for bone pain are the usual recommendations. Also there have been studies that show that subcutaneous Octreotide (Sandostatin) injections have proven to really impact the pain exacerbations usually at 100 ug twice a day at first and then tapered down to once a day. I hope this gives you a start up point and that someone with experience will respond. Best of luck, Carm RN.