• hypothyroidism

    Asked by jojosmom on Sunday, May 26, 2013


    I recently finished my chemo & rad. In the middle of my rad treatments I got swollen eyelids. They checked my thyroid then and it was ok, then 1 month later they re-checked it and it was very low. Now I've been diagnosed with Hashimoto's disease/hypothyroidism/eye thyroidism. Has anyone else gotten this during rad?

    6 Answers from the Community

    6 answers
    • Ydnar2xer's Avatar

      WOW, that is me EXACTLY! Ten years ago with my first b/c (DCIS), I did lumpectomy, rads and then tamoxifen for 5 years. RIGHT AFTER I finished my 35x of rads, I was diagnosed w/Hashimoto's hypothyroidism. So then they had to take half my thyroid & parathyroids out. Then last week my doc noticed my shakiness & blood results and she thinks I'm now Hyperthyroid. Jeeze. Too much or too little--that is my life!

      But I've wondered for a long time whether my radiation had anything to do w/my hypothyroidism..."they" say it's "highly targeted", but I really wonder how many of us have had the same thing happen?

      over 4 years ago
    • GregP_WN's Avatar

      I had radiation in my neck for malignant tonsil. Had 25 shots to the neck. After that my thyroid was low, so I've been on levothyroxine (spelling?). I have had to increase the dosage over the last two years.

      over 4 years ago
    • Lindy's Avatar

      Hi jojosmom, me too! I was told before I started my 35 radiation doses that my thyroid would take a glancing blow. Well, I became so weak it became extremely difficult to climb the stairs in my home. A blood test revealed I had very low thyroid function. I am currently on synthetic thyroid hormone, currently still low, still tired but the doctor is saying I am low "normal"...we shall see who wins this round :-)

      over 4 years ago
    • Honeypot's Avatar

      I have underactive thyroid but not Hashimoto's disease. All I can tell you is that doctors
      like to give you a lower dose than you would like as they are afraid your thyroid will go over
      active instead. I had a battle with my doctor to be given a high enough does in order to feel
      normal. Underactive thyroid is horrible. It is like walking with concrete in your boots and
      when you are back to normal, you will feel wonderful. Read up about it as they dont tell
      you everything about it, i.e. it gives you weak muscles and there seems to be a connection
      with it and irritable bowel syndrome as I and many others have that as well..Honeypot

      over 4 years ago
    • raven's Avatar

      About 1 year after finishing radiation I tested with high TSH, which translates as a low thyroid, no symptoms. I decided to wait and retest. Six months later I tested even worse. A full thyroid panel came back with every measure within normal limits. Still no symptoms. But lately I have started with a scratchy throat and an enlarged something on the right side high up, so back to the Dr.

      over 4 years ago
    • busymom0413's Avatar

      I was diagnosed with Graves' disease 9 years ago which is hyperactive thyroid. I felt absolutely horrible did Radioactive iodine taken synthroid since I guess now I am hypo now. This had nothing to do with breast cancer hope you get to feeling better. Hyper and hypo is no fun I have had all 4 of my parathyroids taken out in January

      over 4 years ago

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