• I am 1 yr out, i dont have a great team to help me with my questions. So i was hoping to find answers here. what do they so after 1 yr?

    Asked by sunshi1684 on Thursday, April 18, 2013

    I am 1 yr out, i dont have a great team to help me with my questions. So i was hoping to find answers here. what do they so after 1 yr?

    I have read they give a full body check or a pet scan? can anyone kinda let me know what is next? thanks

    5 Answers from the Community

    5 answers
    • carm's Avatar

      Hello, I am an oncology nurse that specializes in gyne cancers. I am sorry that you are not getting the attention you seek from your care team. I am assuming that your disease is either stable or has regressed and the best thing would be a scan to check your status along with a blood draw for the detection of any elevated markers. Some docs use CT scans and some use PET scans. It is better to have the PET but if you are doing well then a CT will do fine with a PET only if the CT comes back inconclusive. In either case, the scan will determine the next course of action. I wish you all the best of luck, Carm RN.

      over 3 years ago
    • Kathy's Avatar

      I have my CA125 checked every three months. My last chemo was the end of December. For me they mainly look for an increase in that number and then will order a petscan or catscan. I'm comfortable with that approach.

      over 3 years ago
    • CAS1's Avatar

      As Carm said if the cT comes back with some questions then a Pet scan will be considered. The level of Radiation in a Pet Scan is considerably much higher than a low dose CT scan and a Pet Scan also picks up a great deal of false positives.

      You need and deserve to have a "Great team" helping you. That should be a priority. Find a cancer expert, in your cancer, close to you and findout if they can give you the support and medical care you need.

      over 3 years ago
    • BoiseB's Avatar

      I strongly agree with Cas 1. You need to demand follow-up. I believe that I my cancer came back because one member of my team was on a giantic ego trip (I am in the process of putting together another team) I am finding that it is very difficult to get a second opinion, but thanks to the encouragement from the folks at WhatNext I am working on it.

      over 3 years ago
    • sunshi1684's Avatar

      My 1 yr check up was a pap, no labs , no scans, my doc said it isnt needed for my cancer. He said i only need to be seen every 3 months, and keep having paps, if any thing dsnt look right then he will follow thru. It sounds good to me, but i still see all of you going through more. Does this seem normal?

      over 3 years ago

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