• I am about to finish chemo nd start tamoxifen for 5 years. I am 30 years old. Can you share your experience with it?

    Asked by Mhjohnson0306 on Monday, January 9, 2012

    I am about to finish chemo nd start tamoxifen for 5 years. I am 30 years old. Can you share your experience with it?

    Sooo scared of side effects and how it's going to make me feel. I just want to feel normal again.

    6 Answers from the Community

    6 answers
    • bcwarrioragain's Avatar

      Hi MHJ-
      I am happy to hear you have come this far in your treatment.
      I hope that you find the tamoxifen much easier to manage than chemo.
      For me the tough part was the hot flashes and other menopause like symptoms. Otherwise, no big deal.
      I found it helpful to have all cotton bedding and night clothes, polyseter and other manmade materials aren't breathable. Keep a fan and ice water by the bed.
      Wishing you the best!

      almost 9 years ago
    • copland16's Avatar

      I am 40 and just started taking Tamoxifen in October. I wanted to do everything in my power to reduce the recurrence of my breast cancer. I had stage 2 DCIS, single mastectomy, A/C chemo, Taxol chemo followed by radiation...now Tamoxifen. I haven't had any complications. I was nervous about some of the side effects but I changed my diet and lifestyle to offset them.
      I started to eat better (high protein-to help with energy levels) an exercise daily. I have an 8 month old and work full time and I'm no more tired than I was pre-cancer and pre-motherhood. And actually I think most days I have more energy then my younger self.
      I'm still a work in progress but so far so good.
      Good luck!

      almost 9 years ago
    • jamrck's Avatar

      I was on Tamoxifen for 2.5 years. Held water some, took water pills (with doctor's permission) when needed but that didn't happen very often. Hot flashes were the worst side effect, fan by the bed is very good advice. I even have a small one on my desk at work. After Tamoxifen, my dr switched me to Aromasin - same side effects plus some joint pain, but nothing some ibuprofen didn't help. Will find out this Friday if I stay on it or I'm done. Will be a 5 yr survivor in March.

      almost 9 years ago

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