• I am frightened!

    Asked by Broken_Angel on Saturday, March 25, 2017

    I am frightened!

    Is it normal? Why does it hurt? Is there anyone who I can talk to?

    Why do doctors not answer these questions? My gyno is starting my treatment as endometriosis hormone therapy. They don't want to do any surgery's because I'm over weight but they also won't even talk about it. Is that normal?

    My body hurts. I don't understand why the medications have to make me sucker than I already am.

    I know I sound like I'm whining, and in a way I am. My doctor tells me I have cancer but my girly Dr says it's fine and we will just leave it. Is this normal? No one will talk to me.

    22 Answers from the Community

    22 answers
    • geekling's Avatar
      geekling

      If your doctors wont answer your questions, is it possible you need different doctors?

      I dont know. An independent second never hurt anyone but perhaps you need to explain to your current doctors how you feel.

      By "girly" doctor do you mean a gynocologist? Is the other doctor an oncologist?

      Best wishes.

      over 3 years ago
    • SallyJ48's Avatar
      SallyJ48

      Broken_Angel, yes its normal for cancer to hurt. It is not normal for doctors to not talk to their patients. Please seek out another opinion and find doctors you are comfortable with. You deserve the respect.

      over 3 years ago
    • meyati's Avatar
      meyati

      I feel for you. Your situation with the doctors is scarey-- then nobody feels safe with a cancer diagnosis.
      You have 2 doctors that have different opinions. This definately calls for a second opinion. Try to get a girly cancer doctor--I'm not making fun of you. Find a gynecological oncologist. You can contact the ACS for a list, and contact your state AMA office for a list of suitiable doctors. You also can contact the cancer clinics in Las Vegas, LA and Phoenix- I see that you live in Needles. i live in New Mexico, and people here- Wyoming, AZ, Utah often travel long distances to see our doctors.

      Do you mind me asking where you go for medical care? Needles is so far away. I have memories of it being a 110 at 3 am at Needles.

      Is there a support group that you can go to? I had a rare one on my face. I just didn't click with any support groups in Albuquerque. 3 of the groups are at night in a very bad part of town at night, and there isn't even any parking. They occassionaly have shoot outs in the hospital that hosts about 6 support groups. Here-in Albuquerque, everything is set up for breast cancer patients. I ended up here on What next-- I don't know how, but I got an Email from Whatnext. It has been enough for me to talk about cancer, and even sometimes help people

      You need to make a list of your questions, and you need to take someone with you- it is sad, but some doctors only show respect if you have someone with you that has a strong personality. They also can take notes--

      We are living in a time where American doctors lose their licenses if they prescribe pain killer. That might be part of your problem, and I don't have any answer for that. One possibility is for you to go to a pain clinic.

      Cancer treatments are to cut out cancer and to burn out cancer with chemo, radiation or both. That hurts. My lip and nose still hurts.

      I need to go to bed, or I'll pay for it tomorrow.

      over 3 years ago
    • BoiseB's Avatar
      BoiseB

      No it is not normal to hurt, Cancer is not normal. That is why you are seeing a "Dr." I second everyone's suggestion that you get another opinion. from another Dr. Your Dr.s should at least take notice of your pain and explain it to you.

      over 3 years ago
    • GregP_WN's Avatar
      GregP_WN

      I agree, ask more questions and don't stop until you are satisfied that you have had them answered. If they don't do that, you do need to go to another doctor. We wish you the best.

      over 3 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I am so sorry that you are scared, Broken_Angel. That part, though, is normal. We are all scared when we hear we have cancer.

      I hope that you will find new doctors right away. It is ridiculous that they won't talk to you. Furthermore., i would be suspect of treating cancer as if it was endometriosis. Not the same diseases, by far.

      I can't tell ... have you actually seen an oncologist yet?

      Best of luck!

      over 3 years ago
    • Coconut's Avatar
      Coconut

      Too bad to find yourself in such a confusing situation, fight hard to do something about it. I agree with meyati, take someone with you to the doctors' meetings. It helps a lot, that is if you can. Cancer is not a disease that should be taking lightly, and questions and answers are vital for reaching a good treatment plan. Please seek another opinion, if that is possible, or make your voice louder to be clearly heard. Many best wishes.

      over 3 years ago
    • barryboomer's Avatar
      barryboomer

      Endometriosis hurts. Where is the Cancer ?
      I'm not following.....Maybe it's just Endometriosis...
      Get an answer from the Oncologist or get another opinion.
      In the mean time start losing two pounds a week and you'll lose 100 pounds in a year.

      over 3 years ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Find a specialist and find a doctor you can communicate with. Get two, three opinions. I know you live in a small town,so, you may have to travel a bit. If it is ovarian cancer, you need a gynochologist onchologist for your treatments. Do not settle for a gynochologist, they do not have the additional training and experience needed for ovarian cancer. Sometimes there is pain as a symptom of ovarian cancer. You have to advocate for yourself. It is scary, but fighting this xxx disease, you will find strength you did not know you had. Sending a hug, and telling you. DO NOT SETTLE!

      over 3 years ago
    • meyati's Avatar
      meyati

      OK everybody--Needles is a desolate place-Blythe is too- and Yuma. Las vegas is the largest nearest city--111 miles from Needles-but care could be difficult insurance wise because of crossing the state line----Now a Dutch patient can go to germany for care easier than an American crossing state lines. Riverside, CA is 225 miles from Needles and sorts of works as the regional ER center for the desert communities. LA is 251, but has the traffic and complexity of a confusing big sprawling city. Phoenix is 225. So, this could be daunting.

      I do know non-cancer specialists that are certified in cancer care---My ENT is one of those.. He takes care of some cancers that spread to the brain through the ear, nose, mouth, and throat. Matter of fact, regular oncologists send patients to him because he is so specialized. It's the same way for female cancers.

      over 3 years ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      meyati, I have been to Needles, and yes, it is in the desert. Unfortunately gyn/onc's are a rareity in small towns. The gynochologist may very well be able to help if in fact it is endometriosis. Ovarian cancer , on the other hand, needs a gyn/ onc. Regardless, patients have to be able to communicate with their doctors .

      over 3 years ago
    • meyati's Avatar
      meyati

      Lynne-I spent over 10 years in a village that had 25 homes, and we didn't even have a store in it. There were 2 phones, and I had one of them. I bought jars of Tyelnol and aspirin. neighbors came to my house if they ran out of Tyleno. It was 10 miles to a trading post for some OTC and gas. We could buy an ax handle, material, pawn, gas, 50 lb bags of flour and a sheep. A family doctor and a veternarian were 40 miles away. Albuquerque was almost a 100.
      That is why I'm asking her where she gets her medical care. In some areas, the state and Public Health Services have traveling medical care that includes GYN. In NM, many people travel over 300 miles for medical care. It's getting better.

      That is why I'm asking her where she gets her medical care. The closest major city to Needles is Las Vegas, NV. My uncle Scott and Aunt Elizabeth are buried in Needles.

      over 3 years ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Yes, it is very tough to get good medical care in many rural areas, heck , it can be tough to get good medical care in the bigger cities. My daughter is an office manager for a traveling medical unit out of Fresno that is funded by grants. It is manned by a physican's assistant and nurses, so it is limited in what they can treat, but still sorely needed. I traveled 240 miles for my medical care, no specialist in my town either. I was fortunate to have a car and a driver, my husband. When you have one doctor stating you have cancer ( what is he basing this on is a question to be asked ) and another stating it is endometriosis, a third opinion is needed.

      over 3 years ago
    • BoiseB's Avatar
      BoiseB

      I remember reading somewhere that there was a group of private pilots who fly cancer patients to treatment. I don't know it they were a just Idaho group or if it is nationwide. The article I read was just one that popped up on one of the TV stations FB page. Also my congregation at church sponsored a GoFundMe page to get transportation for a cancer patient to participate in clinical trials,

      over 3 years ago
    • Cindy's Avatar
      Cindy

      I recommend like others that you immediately go to a gynecological oncologist for another opinion even if you have to travel a long distance. I had endometrial ovarian cancer and had to travel from Yuma to Tucson to get treated by a gynecological oncologist (over 200 miles) since there are none where I live. Also, my cancer doctor told me to stay away from any hormone treatments. I would get a second opinion about your hormone therapy. Also, you can talk to your local American Cancer Society about assistance with hotel bills while you away from home. See https://www.cancer.org/treatment.html

      over 3 years ago
    • BarbarainBham's Avatar
      BarbarainBham

      The treatment for endometriosis is medicine to stop the production of estrogen, one of which is Lupron shots, which I think treats prostate cancer also.

      Broken Angel---
      With all due respect, your profile says you are a male. Is that true?

      over 3 years ago
    • Razmataz's Avatar
      Razmataz

      Nothing is normal. I have the best oncologist and PA ever. I am the most abnormal patient. If 5% of people have some side effect that would be me. However; this is about you. You have the right and they have the obligation to talk to you about what your condition/cancer is and why or why not they should treat it or not. Even if they do treat it why they think its best to treat it that way. Of course if your not getting answers, go find them from another clinic. You have the right to request whatever treatment you wish...

      over 3 years ago
    • BarbarainBham's Avatar
      BarbarainBham

      Broken Angel, please come back and let us know how you are and what you found out. We will help you get through this. Tell us about your situation.

      The American Cancer Society has free places to live with other cancer patients in 30 cities around the country. We want to help you find a cancer doctor in a place that has one.

      over 3 years ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      My journey started w/a hernia repair. My surgeon said "how 'bout you try to lose weight and come back in 3 months". I told him, sure, I can do that and I'd likely look the same as I do today. He laughed and said at least you're honest. At over 300 lbs, I had hernia surgery. About the same weight 6 weeks later when I had my hysterectomy -- they found the cancer during that hernia surgery. I understand if you are heavy, there are more risks during surgery and during recovery. But other than the one comment by my general surgeon NO ONE tried to deny me surgery. Find another practice! You owe it to yourself. Good luck!

      over 3 years ago
    • katiefnp's Avatar
      katiefnp

      Dear Broken Angel: I feel for you. It is terrible to be left in the dark about your own body and future. I truly believe they weren't listening to you. They didn't take the time to explain things in at all or in an understandable way. I am going to do my best to do so right now.

      1. Endometriosis can be extremely painful. I know, I've felt with it for 35 years. I think your Gynocologist Dr was talking about treating your pain/female cancer (you didn't state exactly what kind of cancer you have, but I'll bring this up further to discuss in just a minute) by using Endometriosis treatment because that standard treatment involves the use of a nasal spray, shot/injection or tablets that contain Estrogen. The purpose of the Estrogen is to shrink back the end Merriam tissue from where it doesn't belong growing. When you have endometrial tissue growing outside of your uterus, it becomes inflamed from prostaglandins. Estrogen will take all this painful cycle down. Sometimes you will hear Gynecologist Doctors prescribing "the pill" to ease cramp pain or to lessen painful periods, this is why.

      2. I think you may have been told that you have the beginning or an early stage of cervical cancer. Why? Because you said that your Girly Dr. Said "It's fine." When you have cells on the end of your uterus that are just slightly not the right shape and form, sometimes the body can clear it up on it's own. So that's probably why that Dr. Wasn't very alarmed to get a treatment plan going.
      She/he might have said the words cervical dysplasia. Look on your discharge paper and see if that was written. Sometimes cervical dysplasia can turn into cancer and depending what the cells looked like under the microscope, your body just might clear them up like we were talking about.

      I hope this made sense and eased your mind a little.
      God Bless and Aloha
      Katie

      over 3 years ago
    • katiefnp's Avatar
      katiefnp

      In 1. "end Mirriam" was an auto correct I didnt catch. It should say endometrial tissue.

      In 2. I meant to say "end of your cervix," not uterus.

      Sorry about the errors.

      over 3 years ago
    • BarbarainBham's Avatar
      BarbarainBham

      Katiefnp, thanks for the update on endometriosis treatment. I had a bad case many years ago, but they weren't doing that then.

      Broken Angel, although endometriosis is very painful and stressful, it's not life threatening like cancer, so don't be frightened. Hopefully your doctor will be able to give you relief.

      Don't be afraid to tell the doctor your feelings and ask your questions, because that's what he's for. Take a friend to help you talk to him and take notes about what he says. If that doesn't work, you should change doctors.

      Please update us on what's going on with you. Best wishes.

      over 3 years ago

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