• i am going for second openion at stanford,any set of question i can print to take with me

    Asked by jordan on Wednesday, August 17, 2011

    i am going for second openion at stanford,any set of question i can print to take with me

    5 Answers from the Community

    5 answers
    • lovekitties' Avatar

      Hi Jordan, I don't have any personal experience with your diagnosis, but thought I would chime in here to wish you the best with your second opinion.

      You don't mention if you are trying to get surgery for tumor removal or other procedures.

      I did a little check on the net and found the following site that describes non-surgical options:

      Perhaps the info here will help you to know what is out there and ask if they are an option for you.

      over 9 years ago
    • KarenG_WN's Avatar

      Jordan: Thank you for this great question! Questions like this will be helpful to others who are going through their own cancer journeys so we appreciate it.

      Getting a second opinion will help you feel more confident about understanding your options and about the decisions you make. Preparing your list of questions ahead of time is a really great idea to get the most out of your time with your doctor. Bring copies of all of your records with you so you can provide as much background information as possible. There is a helpful document you can print and take with you to record the answers to some important questions when getting a second opinion. I have provided a link to a document, while not specific to liver cancer, is very applicable to your situation. I have also listed some additional questions you can ask below. I hope this information is helpful to you. Just remember, if you do not understand any part of the information your healthcare provider gives you, ask him or her to explain it in another way.

      Questions not on the linked document:
      ● What is the stage of my liver cancer?
      ● What does my pathology report say to you?
      ● How much time can I take to make my decision about liver cancer treatment?
      ● Should I see a liver cancer specialist? What will that cost, and will my insurance cover it?
      ● Are there any brochures or other printed material that I can take with me? What websites do you recommend?


      over 9 years ago
    • PhillieG's Avatar

      Hi Jordan, I don't have the same diagnosis as you but I think this is a great questions. I'll try to think of things that I either asked or wish I asked and post it.
      One thing I always did was to have a "note taker" with me and I'd also bring an MP3 recorder with me in case I missed anything.

      over 9 years ago
    • PhillieG's Avatar

      List of Questions to ask Oncologist:
      • What is my diagnosis?
      -What stage am I?
      • What course of treatment would you recommend?
      -Chemo then surgery, or surgery then chemo?
      • What can I expect from the chemo?
      -Side effects etc.
      • What can I expect from the surgery?
      -Recovery time?
      • What OTHER options do I have beside this one?
      No one knows that answer so don’t even bother to ask. If they start to tell you expiration dates, I would consider another doctor. That’s just me. You want a doctor, not a fortune teller.
      It can’t hurt and if it is similar to the first opinion then maybe it’s the best way to go.
      • Don’t be afraid to look into alternative treatments after surgery. Sometimes chemo isn’t always the best way to go. People have done well on TCM and Juicing/Dietary changes.

      over 9 years ago
    • Nan's Avatar

      Yes please ask them what they think of the Temsirolimus trial which is in second phase.

      Like Nexavar it worked on solid inoperable kidney tumors. Since they take a similar path to creation of blood.

      The Study Identifiers is number is NCT01567930. I won't have a scan to see if it is working for three weeks. The protocol only allows it once every 6 week.

      so good to speak to others with HCC. I wish you did not have it but it has been lonely out here.


      over 8 years ago

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