• I am nearing my 1st scan after stereotactic radiation therapy. Has anyone had it "not work" the Mds were very positive about this treatment

    Asked by Mimi03 on Friday, October 19, 2018

    I am nearing my 1st scan after stereotactic radiation therapy. Has anyone had it "not work" the Mds were very positive about this treatment

    Squamous cell nsclc stage 1

    4 Answers from the Community

    4 answers
    • JaneA's Avatar

      I had SBRT radiation 3 1/2 years ago for an 11 mm met in my lung from rectal cancer. It worked.

      Now, just be prepared, in case this happens to you - the radiation kills the cancerous lung nodules by damaging them.

      So ... sometimes, the dying nodules change into fibrous scar tissue instead of disappearing. That's why happened in my case. So for the first scan or two, it is difficult to tell the difference between "response to treatment" and "progression of disease."

      My medical team were confident that what they were seeing was response to treatment, and they were right. Keep in touch and let us know what your scan shows.

      6 months ago
    • Skyemberr's Avatar

      I have had it three times now. It is not a cure for a stage 4 like me. It has made at least 2 of the tumors retreat and almost totally die. I am still waiting to see what it did to the third tumor.

      It was very worth doing in my case, since one tumor they zapped was 5mm away from my heart! It has now begun shrinking rapidly.

      The very first tumor I had done with SBRT, a year ago, shrank almost to nonexistence and is now growing back very slowly..

      My only negative comment about SBRT is that I got radiation pneumonitis from it. It took months before it hit me but when it did I got quite ill and was hospitalized. Even after being very sick from the pneumonitis I still recommend the SBRT. If I hadn't had it I would have a tumor invading my heart now and who knows what they could do about that!

      Good luck to you.

      6 months ago
    • LiveWithCancer's Avatar

      I didn't have SBRT, I had IBRT. It was for NSCLC (adenocarcinoma), but it was for metastasis on my collarbone. Because of its location, the radiation oncologist wanted to do 15 lower dosage hits of radiation instead of the 1-5 hits for SBRT. I could literally feel the tumor shrinking during the radiation treatments. I told my radiation oncologist that the tumor was shrinking ... he said "impossible" ... but he felt and it felt smaller to him, too. Apparently it usually takes them longer to show that the radiation is working.

      When I had my first scan after radiation - 3 months after treatment - the tumor was gone. It has stayed gone for a year.

      The radiation continues to work after your treatments are finished. So, even if your first scan does not show the tumor is gone, it does not mean that the radiation didn't work. It could still be doing its magic, slowly, surely, and thoroughly.

      Best of luck!!! Let us know!

      6 months ago
    • po18guy's Avatar

      Don't look down, look up! Failure surrounds us. Don't let it drag you down! We are inspired to hope for the best. We are wired for survival. Yes, it is true that someone succumbs to every cancer but, and this is huge: Someone also SURVIVES every cancer.

      Be that someone.

      - From "someone" with a 99.5% chance of not making it. Ten years later.

      6 months ago

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