• I am newly diagnosed with invasive lobular carcinoma. Waiting to see the surgeon. Haven't told friends and family (don't want to ruin Thanksgiving), but I knew you friends out there would understand. Would like email buddy of woman with similar diagnosis!

    Asked by Paprika on Tuesday, November 22, 2011

    I am newly diagnosed with invasive lobular carcinoma. Waiting to see the surgeon. Haven't told friends and family (don't want to ruin Thanksgiving), but I knew you friends out there would understand. Would like email buddy of woman with similar diagnosis!

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    9 Answers from the Community

    9 answers
    • susie81610's Avatar

      google lobular carcinoma in situ and go to wikiepedia that is a good site for info also think it could ease your mind some. Odds seem very good. :) just a little info

      almost 5 years ago
    • leepenn's Avatar

      oooo - you're in that tough waiting period. my diagnosis is breast cancer, but my details are quite a bit different than yours. however, if you want to be email buddies... i'm happy to do that.

      totally understand why you don't want to "ruin" t-day....

      almost 5 years ago
    • mspinkladybug's Avatar

      breastcancer.org is a good one too if u need to talk email me [email redacted] 3 year survivor

      almost 5 years ago
    • traci11's Avatar

      I had the same diagnosis. Lobular cancer is moy common. I would love to be email buddies with you. Maybe I can help you through Shay ur about to go through. I wish I had somebody to wal me through and just give me an idea of what to expect. I can be there for you still recovering from surgery.

      almost 5 years ago
    • PetraW's Avatar

      I was diagnosed the day before Thanksgiving last year with invasive breast cancer. I told my close friends that day and on Thanksgiving. It was very good and did not spoil anybody's day. We all moved closer together and it felt soo good for me to know, that there were people that would hold me at all times. It was also wonderful for my family as they received this support as well.

      Overall, I was very open about my diagnosis and told everybody. I started a large e-mail list and kept people up-dated regularly. This created a big support network for us. People that were far away and could not help us hands-on, prayed for us and send their love and thoughts. Many people close by came to help. I asked for specific help with food and kids and some of the smaller chores that I just could not do during time of hospital, recovery from surgery and during chemo. It was an incredible experience to see how many people came together. Many of them were folks we were not even so close with.

      I found it important to put it out there, it also helps people to deal with it. Everybody wants to help, but is worried to hurt you by broaching the cancer topic and often people don't know, what to do.

      Share and ask for help. Prayers are always good and we can't get enough of them.

      almost 5 years ago
    • sofarsogood's Avatar

      I totally agree with PetraW--share your news (if you need words,"I have some bad news ...."

      I want to tell you, share, share. Having cancer is a profound experience, and many hidden blessings.

      Without cancer, I would have died without knowing how caring People can be to someone they don't even know; I wouldn't have known how many wonderful friends I have; most of all, I wouldn't have re-established my relationship with my brother. My life is infinitely richer now. Don't be a martyr. Give your loved ones a chance to love you.

      Thanksgiving is the perfect time, when everyone is together .

      almost 5 years ago
    • sofarsogood's Avatar

      I'll be glad to be your email buddy. I had invasive, lobular carcinoma, stage IIb, estrogen positive .

      I had a double mastectomy, chemotherapy and radiation . I also participated in a Clinical trial.

      I wil give you my email address or we can use this forum.
      God bless.

      almost 5 years ago
    • steelernutt's Avatar

      i can relate to not wanting to spoil thanksgiving for anyone but you cant keep it to yourself you need to talk to your family and friends....and to be honest there is never a really good time to give them the news...I found that out last month my poor daughter will never forget this october and felt so bad giving her the news when it was her hubbys bday, then more bad news the day before their anniversary then more bad news for her bday an October she nor i will soon forget

      almost 5 years ago
    • catlady's Avatar

      Hi Paprika:

      I also had invasive lobular, stage IIb. (My mother and sister also had ILC.) I've been through ultrasounds, biopsies, MRI, surgery, chemo, radiation, and reconstruction, so I might have gone through what you're about to.

      I'd be glad to talk to you via this forum or via email. If you prefer email, link up with me following David's instructions above.

      You're not alone!

      almost 5 years ago

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