• I am now on Arimidex and have alot of joint pain in the thumbs and finger, then my jaw and was diagnosed with Trigeminal Neuralgial.

    Asked by AuntD on Tuesday, February 5, 2013

    I am now on Arimidex and have alot of joint pain in the thumbs and finger, then my jaw and was diagnosed with Trigeminal Neuralgial.

    Any one else experience it? Need to increase my Neurontin but it causes so much fatigue. Tried to cut my hours back at work but it's hard to do! Anyone else having problems getting back to full time at work??

    7 Answers from the Community

    7 answers
    • karen1956's Avatar

      I don't know what the jaw problem is...but I had horrid joint pain (knuckles and knees) and developed carpel tunnel syndrome on Arimidex. I lived on ibuprofen!!!! I took 1800mg gabapentin (Neurontin) at bedtime...it helped with the joint pain, night sweats and somewhat with the insomnia. I worked full time through out Dx and Tx but we are all different in regards to work including the type of job we have.

      over 6 years ago
    • JennyMiller's Avatar

      I am having some joint/bone pain in the legs early AM -- it wakes me up -- if I get up and move around, it subsides. Of course, then I am wide awake -- so I am up most mornings at 4 or 5!! -- no wonder I fall asleep early on the couch each evening! I hope things get better for you -- Good Luck!!

      over 6 years ago
    • SantaMarie's Avatar

      I have had trigeminal neuralgia and it was not fun. I was on an anti-seizure medication that seemed to do the trick.

      over 6 years ago
    • SandiD's Avatar

      I had a really hard time with various pain on Arimidex. After 6 months I switched to Aromasin which was better but not great. After a year I am now on Femara. It is somewhat better. You have choices! Speak to your oncologist. Mine said I could decide which one worked best for me and even go back to one of them. I wish you the best. These meds are tough on a lot of us, but I imagine cancer would be tougher, so I am going to stick it out,

      over 6 years ago
    • ElsaG's Avatar

      I experienced a lot of joint pain and muscle pain as well on Arimidex. At the suggestion of my oncologist I took a sick leave from work when I was struggling to deal with it and a very stressful job. On a positive side, as soon as I was done with my time on Arimidex, the joint and muscle pain subsided almost immediately just as my Dr. had said it would.

      over 6 years ago
    • attypatty's Avatar

      Dear AuntD:
      Arimidex can cause horrible side effects - joint pain, trigger finger, fatigue to name a few, all of which I experienced. There are other AIs - Femara and Aromasin are two that do the same thing as the Arimidex. There is another AI (Faslodex) but it is administered as a shot once a month. Talk to your oncologist about switching to another AI. I tried Aromasin and had far less pain and side effects. I had to give it up due to an allergic reaction, so now I am on Femara. The Arimidex put me in such pain that my onc said I didn't have to put up with it. After all, this is a 5-year marathon and you have to be able to endure it. The Femara has some side effects similar to Arimidex but not nearly as bad. So talk to your onc and demand to try one of the others. Arimidex can be absolutely horrible and I think we al are started on it because it is the cheapest drug. But there are alternatives and you should demand to try others to see if you experience less pain. Sometimes, we have to be our own best advocates. Good luck and
      Fight On,

      over 6 years ago
    • KimG's Avatar

      I take tamoxifen and it never dawned on me that it could be causing my thumb, finger, wrist pain. Thanks for asking that question. I'm taking it to my oncologist my next appt at the end of the month. I have always had TMJ with my jaw. It's a pain-no pun intended kimg09

      over 6 years ago

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