• I am undergoing papillary (folicular varient) thyroid cancer treatment and really need a friend that has gone through this! Please.

    Asked by Marathonmom on Friday, September 7, 2012

    I am undergoing papillary (folicular varient) thyroid cancer treatment and really need a friend that has gone through this! Please.

    I've been looking for something like this for 2 years, doctors can't release names of similar patient's because of HIPPA laws, so am so hoping I don't strike out with this site.

    12 Answers from the Community

    12 answers
    • GregP_WN's Avatar
      GregP_WN

      Hi MOM, welcome to the ! I had a malignant tonsil taken out, radical neck disection, hole cut in my throat, blah blah blah, you know all the details. Not the same as you but close. Someone here I'm sure will answer with thyroid cancer, there are several here. be patient, sometimes takes a day or two.

      Hope you get the help you need.
      greg

      about 5 years ago
    • emsavard's Avatar
      emsavard

      Hi there, I'll be your friend! I have been a Papillary thyroid cancer survivor since 1997. I have been through it all and back!! What kind of questions do you have? Have you had a radioactive iodine treatment. Please feel free to ask me anything!!!

      about 5 years ago
    • kbarkley's Avatar
      kbarkley

      Hi Marathonmom! I was diagnosed with follicular carcinoma stage II last November and have already gone through one round of RAI. So far things look good. My first ultrasound did not show any signs of growth in the neck area! I am finally on an appropriate dose of synthroid to suppress my TSH with minimal side effects. The worst side effects of suppressive therapy is having an irregular heart beat (isolated PVC's that are benign) and heat intolerance for me. At least they are tolerable so far. Side effects so far from my RAI treatment so far are dry eyes and damage to my parotid glands. Again they are annoying but tolerable so far. I have had a RAI scan (low dose I131 given for the scan) but I am not sure what a TMS scan is?

      about 5 years ago
    • Tracy's Avatar
      Tracy

      I have just joined this site, I have had thyroid cancer twice. Feel free to contact me ANY TIME. When you get your radiation treatment make sure you have the sour candy, this is to protect your saliva glands. It seems like Dr's don't tell patients this (when I first had it they didn't know). You need your saliva glands healthy and the radiation burns them if you don't keep them active while its working its magic on the thyroid. My other suggestion is to find ways to laugh, it can be hard I know but it is the best release.

      about 5 years ago
    • kbarkley's Avatar
      kbarkley

      Definitely have the sour candies!!! My doctor gave me a medication to take for the first 3 days of RAI and I sucked on lemon drops nonstop. Six months later is when I started to have problems with my parotids. I think it would be much worse if I hadn't taken the meds and sucked those lemon drops!!! Tracy is right, definitely try to find humor in your life. When my late husband was going through his battle with brain cancer 26 years ago, we used humor to deal with all of it. We called it tumor humor!!! Have a great day and keep your chin up!

      about 5 years ago
    • lmbarkle's Avatar
      lmbarkle

      Hi, I was diagnosed with the follicular variant, been in remission for two years now! If you have any specific questions, let me know! I'd say my biggest suggestion is don't be afraid to call your dr. with questions. They don't mind & are a lot more useful than google : )

      about 5 years ago
    • ILDenlou's Avatar
      ILDenlou

      my name is denlou i am 58 i have tall cell papillary had my I131 been 7 weeks since

      about 5 years ago
    • bavin's Avatar
      bavin

      HI!! I know it's been a month since you have posted this question so I wanted to see how you were doing and hope everything is going well for you! I'm about five years out from my thyroid cancer. I hope you are doing well and if you ever need anything or want to talk do not hesitate!

      about 5 years ago
    • ILDenlou's Avatar
      ILDenlou

      Hi i have papillary tall cell varient i am 58 years old found out march 29, 2012 fairly new at this had 5 hour surgery and I131 i will try to answer anything you want to ask me i will try to help

      about 5 years ago
    • ILDenlou's Avatar
      ILDenlou

      hi my name is denise i also have thyroid cancer it is called tall cell it is a agressive form of papillary . i am going to find out if i am in remission dec 6 i cant wait . How can i help you please let me know having cancer is scary .

      almost 5 years ago
    • Meera's Avatar
      Meera

      Hi Marathonmom, You posted this a long time ago, but I just saw it. I have a similar cancer, operated and no RAI. That was 6 months ago. All seems well so far. How are you doing? I have tr ied to research all the issues around this quite thoroughly, so feel free to ask questions, if I can be if help. I hope you have felt supported. I really understand how isolated one suddenly feels when you first get the diagnoses. Please be in touch if you would still like to.

      about 4 years ago
    • Carolina18's Avatar
      Carolina18

      Go to www.thyca.org. There is a person-to-person network that can provide a volunteer that has been through a similar situation to yours. Thyca is a great organization, and the help is available. http://www.thyca.org/sg/tppn/. Best regards.

      over 3 years ago

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    Read and answer more follicular variant (also called mixed papillary-follicular variant) questions.  Also, don't forget to check out our Follicular Variant (also called Mixed Papillary-Follicular Variant) page.