• I am wondering what to expect to feel like during my RAI treatment isolation days? Do I still follow the low iodine diet ?

    Asked by Grammyof3 on Friday, January 24, 2014

    I am wondering what to expect to feel like during my RAI treatment isolation days? Do I still follow the low iodine diet ?

    8 Answers from the Community

    8 answers
    • Tracy's Avatar

      I had it in 2005 and just had a restful weekend reading and sleeping away from family in my bedroom. The reason you are doing the low iodine is so that any thyroid cells (which love iodine) will suck up the radioactive iodine that you are given. I did not have to follow a special diet while having the treatment itself but I think that may be up to your doctor.
      When I had this treatment in the mid 1970's it was experimental. I was placed behind a big lead shield for 3 days and tested with a geiger counter before I was allowed out. It was a very strange experience for a teenager.
      This treatment has improved so much in 40 years - Tracy

      about 7 years ago
    • Corri's Avatar

      The first time I did RAI, the doctor gave my Thyrogen shots (which are expensive, and the insurance only covered part). I was probably overzealous, but prepared foods ahead of time (from the downloadable cookbook on ThyCa). I set up my bedroom with a small table so I could eat, and had a pile of books to read. It was a great weekend off!

      The second time, I had changed doctors (long story, way better doctor!), and they wanted me to do the whole 6 week process (diet and off my meds). The diet wasn't bad at all. Really. Again, I prepared foods ahead of time, because I read that most people are very tired. I didn't want to risk eating something quick because I was too tired to cook. By the time I did the RAI, I was sleeping 18+ hours a day, couldn't think and actually gave up driving. I began to get depressed (being tired does that to me). However, the doctor was able to get a very accurate reading of the left-over thyroid cells and knows how to continue my treatment.

      during treatment, my doctor (both times) said to stay on the diet, just to be sure.
      Foods that I really enjoyed were: sweetened nuts, spicy nuts, fresh ground peanutbutter (at Fred Meyer if you have that near you. Winco does it too). jambalaya, meatloaf (I made this up and used muffin tins to cook it in), chicken soup, what are those egg white cookies--those are amazing! I made bread and fried slices in a little olive oil spray and made toast every morning.

      No milk products--even soy, almond, and the others have carnageenan in them (seaweed). That part was difficult, because I need something in my coffee. Cocoanut milk worked.

      If you're able to prepare a little ahead of time, it won't be bad. Really. And its worth it for an accurate reading. (there's a spot on my liver. I wouldn't have known if I had not been following the diet.)
      Best of luck to you!

      about 7 years ago
    • Corri's Avatar

      I want to echo the fluid intake recommendations. If you don't drink enough, you could lose salivary gland function. I drank a case of water in two days. Another case in the following three. Plus orange juice. (Watch labels)
      Lots and lots of water. My mother lost salivary function. She was miserable. It doesn't return once it's gone, and it's the radiation that does it.

      about 7 years ago

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