• I asked a question about damage to teeth that a friend of mine was concerned about, I asked my doctor to expand on it.

    Asked by NeckCancer on Sunday, September 1, 2019

    I asked a question about damage to teeth that a friend of mine was concerned about, I asked my doctor to expand on it.

    He started telling me about all of the possible problems that I could have from radiation to the neck/jaw/throat area. I then asked about the possible carotid artery issue that I read about here, he told me about that. Then I asked about the swallowing problems from radiation occlusion to the esophagus, he explained that. What I am shocked at is that all of these things weren't brought up to me and explained early on. Why do I have to read about this on a website and get educated about it here instead of from the people doing the damage? Now I just want to know what else to expect? What are some things like these that you have found out about that weren't disclosed by your doctor or nurses? I still can't believe there isn't a one page warning sheet that we are given in the beginning.

    8 Answers from the Community

    8 answers
    • GregP_WN's Avatar
      GregP_WN

      Most of these side effects are still not explained to us or warned about them.

      about 1 month ago
    • cbchollet's Avatar
      cbchollet

      i was not warned about hearing loss or lymphedema or lymphorhea. I was very angry when these happened, and I had never heard about them. A hearing aid has brought me back into the world, but lymphedema is chronic, takes time each day to deal with and is expensive due to cost of compression garments and pump. You would think you would be warned about a possible $5000 that medicare does not cover!

      about 1 month ago
    • meyati's Avatar
      meyati

      arthritis in the neck and shoulder, shrinkage of the Eustachian tubes to the ears-that causes more sinus-ear infections because of the bad drainage. dry mouth.

      While I had a very good doctor that apprised me of some things-burns, teeth, gums, swallowing, ears, the only real reason that I had a good idea is because my daughter is a speech pathologist. My daughter would come home from school, and then work. and talk about these things.

      about 1 month ago
    • meyati's Avatar
      meyati

      Forgot- arthritis in the jaw that causes painful chewing, ear and head aches.

      about 1 month ago
    • thestarr's Avatar
      thestarr

      It's been 8 years since my cancer treatment for the throat. I'm still having issues on everything that is being written about in this article. Just yesterday, another tooth fell out. When does this end?

      about 1 month ago
    • meyati's Avatar
      meyati

      never while we are living.

      about 1 month ago
    • Dkatsmeow's Avatar
      Dkatsmeow

      Actually my doctors did discuss alot of these things from the beginning. Scared the XXX out of me. However when it came to surgery he glossed over the possibilty that I would never swallow again. Basically told me I would have a sloped shoulder. I figured I could handle that. Guess what I cant' swallow they had to cut a nerve. My teeth are crumbling out of my mouth & I can't afford to have them tended to. Also lymphodema & a very stiff neck. Also at increased risk for stroke due to cartoid artery issues from radiation. But I am breathing so I guess that's what counts!

      about 1 month ago
    • meyati's Avatar
      meyati

      Now, stroke isn't anything I was told about

      about 1 month ago

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