• I can't find anyone with my cancer

    Asked by carolyn on Thursday, March 7, 2013

    I can't find anyone with my cancer

    If you have mucosal melanoma (mine is ofthe tongue)
    please contact me. I feel alone. Hard to fine prognosis/protocol information.

    3 Answers from the Community

    • Dick_K's Avatar

      Carolyn, while WhatNext is a wonderful place for support and information, personal observations are limited to that of those who choose to post and as you note, your cancer is rare. There are two other sites just for those with melanoma; you might want to check the forums there. Here are the links.


      Best of luck to you.

      over 3 years ago
    • SueRae1's Avatar

      I hope someone with your diagnosis is out there and will contact you soon. Even though I have different cancers then you do, there is a lot of common feelings, experiences, etc that all of us, caregiver or survivor, go through. We are here to support you answer your questions and cheer on your celebrations and victories. sending your healing vibes and lots hugs.

      over 3 years ago
    • carm's Avatar

      I think it comes down to finding the right place to seek the answers you are looking for. I am attaching a link to a site that has people with the same diagnosis who are long term survivors. I hope this helps you, Carm RN.


      over 3 years ago

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