• I'd love to hear from some Lymphoma patients about what, if any, diet changes you adopted after treatment?

    Asked by laleclair on Monday, September 10, 2012

    I'd love to hear from some Lymphoma patients about what, if any, diet changes you adopted after treatment?

    I'm reading a lot about plant based, vegan diets as a way to prevent and treat illnesses like cancer. What do you think? What have your doctors said? I have diffuse large b cell NHL.

    8 Answers from the Community

    8 answers
    • GregP_WN's Avatar

      Welcome to the site! The only change I made was to eat everything in site that I could once the sores went away in my mouth, and I was able to eat again. I lost 50 # so I tried to gain some back. I'm not a big follower of the eat this and you won't get cancer thinking. Or, eat this and it will cure cancer. I do believe in a balanced healthy diet. Believe in it, but reality is, I don't follow it. I have found that after my last radiation treatments 4 years ago, I don't like the taste of a lot of things, have a problem swallowing, and I eat what Ilike. So, I guess I'm not the one that should be offering to you what to eat. I'll just shut up and go sit on the couch now.

      but welcome to the site anyway, others that follow strict diets will chime in before long.

      about 4 years ago
    • erie94's Avatar

      My doctor simply told me a couple things. Eat high protein foods, and drink lots of water to flush out the chemo. So I did. Pre-cancer, my diet was minimal meat intake, and no dairy. When I was told to eat high protein foods, I was surprised but I did as the doctor ordered. Steaks and cheese was in most of my meals, but my body was not used to it, hence I also needed fiber supplements. Ouch! Anyway, I gained about 15 lbs., now have lost 10, so here I am reducing dairy all over again!! Already missing quesadillas! :(

      about 4 years ago
    • nobrand's Avatar

      Hi laleclair :) That's a good question you have there! I have been a vegetarian since my teens and ended up with a DLBCL diagnosis a few months ago. Of course, living as healthy as possible is a good idea.. but I'm living proof that a plant-based diet doesn't prevent cancer. I wish I could say otherwise!

      My diet has changed since starting treatment, but it's more in response to treatment. I can't have spicy foods that I used to enjoy thanks to chemo. That's about all I've changed though..

      about 4 years ago
    • Harry's Avatar

      I have made no changes to my diet and my doctor, an experienced oncologist, has suggested none.

      Based on what I have read and heard from others, I suggest you do whatever makes you feel better. If you prefer a vegan diet or some other special diet, then go for it as a supplement to your regular treatments.

      about 4 years ago
    • HeidiJo's Avatar

      During treatment I just ate what ever I could get down, between mouth sores and nausea. Although I had a voratious appetite for leafy greens!
      After treatment; I have always been a healthy eater, so I think the healthier you eat, the more energy you will have.

      about 4 years ago
    • 1Survivor4life's Avatar

      I was a good boy until I hit the five year mark. I then decided to enjoy life and quit living like there is a shoe waiting to drop. I tried new things and enjoyed the simple ones like a great steak and a fresh salad. I eat more fiber and vegetables because I should and not because I had cancer. I don't eat Salsberry steak anymore. Once my favorite and then chemo took that from me. All I can say is bad experince.

      about 4 years ago
    • debbie1951's Avatar

      Hello laleclair,
      My diet changed after diagnosis to a nearly vegan diet. Trying to eliminate dairy, except for yogurt. A dietician in the Cancer Transitions Program recommended a diet high in brightly colored fruits and vegetables, lean protein, and limited carbohydrates. No diet sodas or artificial sweeteners. Lots of water and low fat. Only olive oil. Hope this is helpful.

      almost 4 years ago
    • lymphalive2day's Avatar

      I also had primary mediastinal Large diffuse B-Cell lymphoma 12 years ago. I am very interested in nutrition.

      At first, (right after radiation) I consulted a naturopath and went on macrobiotic diet with a lot of sea vegetables. My blood counts returned to normal very quickly and I lost the chemo/steroid "water balloon" I was carrying. I felt very good, but after 4 months was loosing too much muscle mass and felt weaker. It was also very difficult to follow. I added back more animal protein and variety of vegetables and grains. I had been vegetarian/vegan for longer periods of time in my 20's, before I developed the lymphoma.

      I have since discovered I have the antibodies against gluten and have been gluten free for @ 4 years, that has made a great difference. Today (4 years) I am very healthy on a my OSU doctor's recommended neutrogenomic diet of small amounts of fish and grass fed meat, milk and pastured eggs with no gluten and plenty of vegetables and fruits. I avoid plant oils and seeds and I get more of my carbs from potatoes/sweet potatoes/ squash and less from grains, no gluten. I also take fish oil, B complex, Vit D, etc. My doctor, Glen Aukerman, MD, has recently published a book called "Better Health in 120 Days" http://www.woosterbook.com/additional/betterhealth.html. All my inflammatory markers consistently stay low and I don't have the arthritic pain I was troubled with. I can support an active full time job and exercise. I sleep well and have a happy mood. I am very happy with this over time and my health is the best it's ever been, even though I will be 50 next year and survived this massive tumor.

      My heart tests last year were better than expected. (There had been some concern about post radiation cardiomyopathy after the large field of radiation). although I did have some damage after treatment, for the most part my heart muscle and coronary arteries have healed well since my last testing 5 years ago and ejection fraction is up to 65% now. My bone loss, rapid after cancer treatment, has finally stabilized. So I'm still getting good improvement over time on this diet and it is very do-able in the world/family, whereas on a totally plant based diet I had chronic inflammation and generally felt weaker and caught colds more easily.

      almost 4 years ago

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