• I don't know what to expect next, I am hoping for a hysterectomy so alleviate further concerns. Any advice?

    Asked by bullet27 on Monday, December 10, 2012

    I don't know what to expect next, I am hoping for a hysterectomy so alleviate further concerns. Any advice?

    I was diagnosed last week with moderate to severe dysplasia with carcinoma in situ. I go next friday for further eval possible biospsy and colpo. I just want to move forward with a hysterectomy. My family is afraid, I am afraid. I am having symptoms, more than I have shared with my family. I fearful that Friday it will be discovered that it may be invasive. Did I mention that I am scared?

    5 Answers from the Community

    5 answers
    • Peroll's Avatar

      Bullet, Being scared is natural. I was very scared just after my diagnosis 8 1/2 years ago. What you need to do is make sure that your fear does not consume you and prevent you from functioning, understanding what is going on and making the decisions you need to make.

      Next Friday you need to be able to listen to what the doctor has to say, understand it, ask questions about your condition and the possible treatments and be able to make decisions. Jumping right to a hysterectomy may not be the right or best thing to do. I urge you to take a friend or family member on Friday to help you listen and ask questions. I had my Dad at my first post diagnosis appointments with my gastroenterologist and surgeon and it made a big difference as he helpd ask the necessary questions and made sure that we got all of the questions answered. Good Luck and let us know how it goes.

      almost 8 years ago
    • Harry's Avatar

      Peroll is right. Fear is normal at this stage. You have every reason and every right to be afraid. But, you have to learn to fight back. Don't worry, you will. I agree with Peroll also about having a family member come with you on Friday. You don't have to, I didn't, but it helps a lot of people and two heads think of better questions.

      Whether you go with a family member or not, bring a notebook and ask questions. Doctors tend to speak in jargon so you need to get terms explained. Try to understand and ask if you don't. If you don't like what you are being told, you should consider getting a second opinion. If you are not already going there, then the IU Simon cancer center in Indianapolis might be a place for a second opinion.

      Welcome to the forum--even if a bit belatedly. :-) This is a great place for support. You might try following Greensmythe, another Hoosier from Fort Wayne. She was diagnosed recently and had some of the fear you have. She went to that IU Simon Center for a second opinion and was pleased with the result. She is just starting her treatment this week.

      Fight! Live!

      almost 8 years ago
    • gwendolyn's Avatar

      This period of total uncertainty, after initial diagnosis, is the worst. I suspect that not knowing anything about what to expect is worse than knowing the worst. I agree that you should take another person with you to all your appointments, and bring a notebook for one of you to write things down.

      In the meantime, as questions/concerns come to you, write them down in the notebook and try to set them aside mentally. Bring your list of questions/concerns with you to your appointment and make sure they are all addressed.

      almost 8 years ago
    • Sugarshine's Avatar

      Everyone here has given you the best advice possible, I just want to make sure you pick up on the most important part. Take this time to formulate questions, write them down and bring them with you. When they start giving you information a lot of times what you want to know goes right out the window. Could be from good news, could be not so good. I had my questions written and the Doctor told me all my tumors had shrunk , when I got home all I had written was " the tumors have shrunk !!!" Luckily my son was with me and remembered all the new aspects of my treatment and could tell me again lol. I am a year post diagnosis and I am still scared. I have great days and not so great days. Going to start big boy chemo the 17 th and am very excited about that. The Gemzar stopped working and the clinical trial fell through, filled up just as I was recommended for it. Have been off treatment for 3 weeks which is more scary to me than treatment. This forum is what helps me work through the fear and depression so welcome and I hope you feel as at home here as I have. Good luck on your journey.

      almost 8 years ago
    • Pappenstance's Avatar

      I don't think I can add much to the great advice already given. This waiting period was, for me, the hardest part. My Ob/Gyn who'd found the cancer told me the day of diagnosis that he would recommend a total hysterectomy. But once I saw two separate gynecologist oncologists two weeks later, we realized a hysterectomy wouldn't be the way to go and would actually hinder my treatment. Everybody's experience is different, but I would urge you to somehow be patient until at least getting your biopsy results. Taking my dog for walks in the park did wonders to get my mind off of the diagnosis, if even just for an hour. :) Good luck to you!

      almost 8 years ago

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