• I feel like I am not getting enough information I go for surgery in 10 days and I would just like to talk to someone else that went through

    Asked by trinas2001 on Saturday, December 29, 2012

    I feel like I am not getting enough information I go for surgery in 10 days and I would just like to talk to someone else that went through

    my situation I have squamous cell carcinoma unknown primary and I am scheduled for a complete hysterectomy and to take out my lymph nodes in my right and left side from the upper abdomen down in the pelvis and groin they don't know where th cancer is at but it is in my lymph nodes so surgery and then what I have not been staged and am feeling like they are just hoping to take out the right thing here what can I do? Any advice or suggestions ?

    3 Answers from the Community

    • BuckeyeShelby's Avatar

      I had a complete hysterectomy in August. Sounds like your procedure is more complicated than mine. No lymph node involvement, but they did take the omentum, the fat layer over the abdominal organs. No complications w/surgery. Surgery was on a Thurs & I was release on Sunday. Since I live alone, I stayed w/my best friend & her family for about 4 days, until we both felt comfortable I could manage stairs on my own & figure out how to inject blood thinners my surgeon had me on for 30 days. 6 weeks off work & on lifting restrictions. I hope that info is helpful, as I'm not sure what kind of info you are looking for. Surgery for me wasn't a big deal. Cancer is often staged after surgery. Because of the omentum involvement, I have stage IV uterine cancer, determined after the procedure.

      almost 8 years ago
    • nancyjac's Avatar

      What information are you lacking? It sounds like you have quite a bit of detail regarding the plan for your upcoming surgery. What comes next will depend in great part on the results of your surgery.

      almost 8 years ago
    • Lirasgirl33's Avatar

      Hi trinas2001. I had a radical hysterectomy & oopherectomy with lymph node dissection and removal earlier this year. I also wasn't staged until after the surgery. Please let us know what type of questions you have.

      If you are unclear about anything having to do with your particular surgery I would suggest making a list of all the questions you have and speaking with your doctor about it. Take someone with you as having an extra set of ears is always a good thing. This will shed light on a lot of things and can take some of the fear away. Knowing what you're in for is always something we as cancer patients like to be able to know. Of course this isn't always possible.

      almost 8 years ago

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