• I finally got to see my oncologist!! Only to hear bad CT results

    Asked by michelerainh2o on Wednesday, October 14, 2015

    I finally got to see my oncologist!! Only to hear bad CT results

    I thought I might catch a break since having surgery, but no such luck here. It's amazing how fast this metastatic melanoma can appear. My liver & ascending colon are now involved. They are going to do a PET again in December already.

    I did not get into specifics with the kids; just that there's some areas they are going to watch a little closer on mom.

    I'm going to concentrate on getting my strength back, and get ready to battle!!! HEAR ME ROAR (lol)

    11 Answers from the Community

    11 answers
    • barryboomer's Avatar
      barryboomer

      Are they recommending any treatments?

      about 4 years ago
    • TXHills' Avatar
      TXHills

      Might you be a candidate for the immunotherapy that is working for some melanoma patients?

      about 4 years ago
    • michelerainh2o's Avatar
      michelerainh2o

      barryboomer- my doctor told me to continue with my medication Tafinlar & Mekinist. I was questioning them on my medication before surgery, and they told me that it's still like 90% effective. Eventually my body will build up resistance to it totally. What I don't understand is that if this medication is still effective as they are saying- how are new tumors showing up? I just had a PET in Aug before my surgery- these tumors were not there.

      My doctor did not discuss any treatment options- he wants to wait to see the PET results in December. These doctors don't seem to get too excited about anything!!

      TXHills- Tafinlar & Mekinist is a Braf inhibitor which I think falls under immunotherapy. I suppose I could be switched to a different one tho?

      about 4 years ago
    • barryboomer's Avatar
      barryboomer

      Your Docs don't seem to get excited about anything because THEY are not the Patient.
      UGH....I guess they have to stay aloof and not get too emotionally involved as it is a tough business they are in. I sound like a broken record but in my opinion to give yourself the best chance get yourself as healthy as you can. Total Vegan Diet and some supplements. Try and get some Pot....smoke some big doobies....Read Radical Remission from Kelly Turner PHD. Check out Chris Wark's Site.....and also follow the Docs advice unless it stops making any sense. Many on this site have fired their Oncologists. Your Cancer has spread and is a nasty kind. I use this analogy but if a boat springs a leak yes we need to bail and bail but eventually the boat will sink unless we stop the cause of the leak....fix the hole. Sometimes analogies are helpful......Check out all aspects of nutrition and cancer on PubMed.....Take some of the power back as it feels good to be somewhat proactive....Get Busy.

      about 4 years ago
    • barryboomer's Avatar
      barryboomer

      http://nutritionfacts.org/topics/cancer/ a very interesting nutrition and cancer site run by and MD....

      about 4 years ago
    • michelerainh2o's Avatar
      michelerainh2o

      Thanks barryboomer- I'll pass on the doobage for now, but look into the Vegan and supplements. I understand what your saying in your analogies, and appreciate you putting that out there for me.Your dead-on about Docs having to keep distance, and I feel my doctor is trying to keep me calm- I'd rather pass on the "sugar-coating" myself and he tells me like it is. Since getting more active lately on this site I have gathered a lot of Docs get fired, and It may end that way with mine. I need to be more proactive like you said and feel more empowered. Thanks again & I'll look into info!!

      about 4 years ago
    • mbeshey's Avatar
      mbeshey

      Strength yes! Battle yes! Roar yes!

      about 4 years ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I'm sorry you got bad news. Battle on!

      about 4 years ago
    • CAS1's Avatar
      CAS1

      Sorry..Immunotherapy might be able knock it right out as can a number of other treatments..

      Do your research because this is indeed treatable.

      about 4 years ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Sorry to hear about the test results. Have you had a second opinion regarding your diagnosis and its progression? Wish positive attitudes were the miracle cure . ROAR ON!!!!!!!

      about 4 years ago
    • papabill's Avatar
      papabill

      Been there..and am there now. Originally diagnosed with melanoma on my scalp (January 2016) and follow-up CT/MRI's for two years all good. UNTIL this past January (2018) when CT showed it re-appeared on my liver and confirmed via a liver biopsy. Oncologist who has been following me for these past two years diagnosed it now as Stage IV metastatic melanoma and immediately put me on the immuno-therapy infusion drug Keytruda. Same one that they put President Carter on several years ago and he had unbelievably good results. Now they found another melanoma on a different spot on my scalp and oncologist has me "staying the course" with the Keytruda. I have had two infusions as of now with two more to go before my next scheduled CT/MRI to assess any changes....good, bad or nothing. Living on pins and needles. Love to hear from others and keeping this dialog going. Keep the faith..

      almost 2 years ago

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