• I had triple negative breast cancer.I have been told I'm at a higher risk of reooccurance. Any advise?

    Asked by larrt on Thursday, October 4, 2012

    I had triple negative breast cancer.I have been told I'm at a higher risk of reooccurance. Any advise?

    I've been told I have a higher risk of reoccurance, because I didn't have chemo or radiation. I'm 14 months cancer free and would like to hear from others who had this kind of cancer.

    8 Answers from the Community

    8 answers
    • Lynn1947's Avatar

      Reading this bothers me.I didn't have triple negative but had non invasive Ductal Carcinoma in Situ.Stage 0.My breast surgeon said I didn't need chemo or radiation.My family doctor and my oncologist didn't think I needed it.Reading how you feel and the way I felt makes me wonder.My tumor was 1/2 centimeter(very tiny).For my treatment it's take tamoxfin for 5 years.I guess what I wanted was at least radiation to burn this disease. I've only talked a couple people who had only surgery and take tamoxfin. Stage 0 can't get any better but still it preys on my mind.I've had alot of scares since my dx 3 1/2 years ago.My friends and relatives all had chemo and radiaton and living a long life.My mom didn't have chemo in the 1940's and she lived 60 years. Dx at age 21.As my breast surgeon tells me "Everyone is different".I need to add my surgeon did bring my health history and dx at a doctor's convention and it was suggested I take tamoxifin no chemo or radiation.I feel good he asked a group of doctors.It's just always something in the back of our minds.

      about 5 years ago
    • ruthieq's Avatar

      Its hard to answer this without more info, like what stage and why you didn't have chemo or rads, what type of surgery if any. How do you know you're cancer free? At any rate, My advice would be to keep a copy of all tests you had all xrays scans etc. Call your onc for any symptoms that last more than 2 weeks or any new constant pain. Good luck! :)

      about 5 years ago
    • PinkRibbons' Avatar

      Hi, I also had Trip Neg BC, I was told it is a more aggressive breast cancer but it responds great to chemo. Why didnt you have chemo or radiation? I am on year 4 and doing great :) because of this type of cancer I go to my oncologist every 2 months for tumor marker test and to be checked. Ive had a few scares but thats all they were was scares. My tumor was 2cm stage 2 grade 3 no lymphnodes invaded. Take care of yourself and be positive. Do you see your oncologist every 2 months as well?

      about 5 years ago
    • Teddy's Avatar

      I was stage 1 and dr told me I had 80% of it not coming back with surgery only, 87% with chemo. I was 52. I made difficult decision to do chemo (who wants to do it). I had local reoccurrence 1 yr out of diagnosis and 6 months out of chemo. I then had surgery, radiation and chemo. I am NED now and last treatment was May 2011.

      about 5 years ago
    • SueRae1's Avatar

      I was diagnosed with stage 1 invasive Ducal cell triple neg breast cancer just two years ago. The tumor was just under 1 CM. I had a lumpectomy with a large margin, followed by radiation therapy. I did not receive chemo due to the fact I was (and still am) under treatment for advanced renal cell carcinoma. A 1.7 cm rim cell trip neg rim cell lesion was found on my liver during my regular follow up abdominal MRI in late April of this year. Trip neg is more aggressive then most other breast cancers and doesn't have the same types of targeted treatments. Cancer is a tricky devil, and can hide out in your body for years -so my advice is to get regular scans. so that if there is a reoccurrence it is caught early. My renal cell markers are normal and have been for the past 3+ years - when lesions were found on my liver (I had a nephectomy in 1995). My breast cancer marker was just above normal in May, and even though the lesion grew a tad when I was rescanned in July the marker was normal. My new cocktail seems to be working, the breast cancer lesion is now smaller then it was in April/May, and my renal cell cell lesions, which had been stable for the past three years are shrinking as well.
      My advice is to seek a second opinion, i have done this every step of my journey even though I love and trust my team. Just having confirmation of treatment is comforting. Another set of eyes can also bring more ideas into play on what to do going forward, etc. My oncologist is very excited about genetic testing suggestions we got from the 2nd opinion and we are moving forward with them.

      about 5 years ago
    • Ryeman's Avatar

      Please find a naturopath
      They know how to support the immune system

      about 5 years ago
    • larrt's Avatar

      My cancer was stage one. I didn't have chemo, because the first oncologist I saw missed the triple negative. When I changed dr's they redid the test on the tissue, from my biopse and masectomy and found that it was triple negative. This was more than six months out from my diagnosis and she didn't think chemo would be helpful at that time. I am currently seeing my oncologist every three months.

      about 5 years ago
    • MarnieC's Avatar

      Hi larrt, I've done a lot of research on triple negative BC and wrote an article that might assist you: http://marnieclark.com/effectively-dealing-with-triple-negative-breast-cancer/
      If I can help you please let me know.

      about 5 years ago

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