• I have been in remission for almost 2 years. Just had a Ct come back positive for lung nodules. Should I be worried?

    Asked by Psalms138 on Thursday, September 20, 2012

    I have been in remission for almost 2 years. Just had a Ct come back positive for lung nodules. Should I be worried?

    Type of cancer I had was anaplastic large cell lymphoma. I had stage 3 with tumors in my pancreas ovary and lung.... I feel I should be worried but doc says re scan in 2 months.... seems a bit nonchalant to me....

    7 Answers from the Community

    7 answers
    • Peroll's Avatar
      Peroll

      Well my advice is sort of mixed. The fact is that half the people in the world w have spots in their lungs, so that says don't worry. However, my personal experience is one where the spots really were cancer. You can have the spots biopsied but it dose hurt alot. I would ask your doctor what the risks are of waiting vs. finding out now. Two months is not long but aggressive cancer can grow fast. Even if it is cancer you can beat it. I had my tumors removed 4 years ago so surgical removal is possible. So is radiation and things like radio frequency ablation, so there are lots of options. Ask lots of questions and insist on answers you can understand. Good luck, I know you can beat this.

      almost 5 years ago
    • Tracy's Avatar
      Tracy

      If you don't feel good about what your doctor says you probably want to push for more testing. I have nodules in my right lung that they think are probably left from infection. they keep checking them but they don't change. i was really scared when they were first found but that was many years ago. One problem with having Cancer is that you will worry about anything like this for the rest of your life, make sure you have a Dr that you can trust to take your gears seriously. If you are worried you need to be checked out. Take care, Tracy

      almost 5 years ago
    • po18guy's Avatar
      po18guy

      Is your ALCL the ALK+ or ALK- variety? If you were ALK+, the outcomes are much better and I would be less worried. Even if your were ALK-, the fact that you are in a durable remission is a very positive indicator. If you were ALK-, I would seek out a second opinion on the nodules, as the ALK- variety acts aggressively like other T-Cell Lymphomas. Praying that you do not have a relapse. However, even if you do, there are treatments available that were not when you were last treated. Here is an article published just last week by Dr. Steven Horwitz at Memorial Sloan-Kettering on a case study of ALCL (ALK-):

      http://www.ascopost.com/issues/september-15-2012-lymph-supplement/management-of-a-patient-with-systemic-anaplastic-large%C2%A0cell-lymphoma-following-failure-of-one-or-more-combination-regimens.aspx

      Dr. mentions Romidepsin (Istodax). I began on Istodax in the phase II trial three and one half years ago and remain in the long-term study of the drug. I have been in complete response for just over three years. Peace be with you.

      almost 5 years ago
    • po18guy's Avatar
      po18guy

      Please copy and paste the entire link into your browser, as the truncated version that is highlighted in my answer sends you only to a table of contents page that does not contain the article(?)

      almost 5 years ago
    • GregP_WN's Avatar
      GregP_WN

      As far as the spots, I cannot speak to, I know it's hard not to worry. All I can offer is what I tell myself, and everyone else in earshot. Worrying just takes up time out of today. Right now, this minute, today, you have nothing to worry about. Tomorrow, if your told that the spots are something bad, then you HAVE something to worry about, but even then, what does worrying do? I take it one step at a time and tell myself, I am OK, everything is fine, then when I'm told that I have a problem I tell myself, it's still ok, the docs will figure out how to battle this, and I am all in, let's go, get after it and beat it back again.

      A positive mental attitude can be the most powerful medicine you will ever get, and your best weapon against the disease that's trying to get us. I choose to not let it win, and let it, and everyone else around that I WILL WIN, IT WILL NOT.

      All that said, it's hard to keep your mind out of the negative places, but try. Keep your mind on what you want, and off of what you dont want.

      Best of luck to you, plan what your going to do to celebrate in 2 months when your scan shows nothing!

      almost 5 years ago
    • Psalms138's Avatar
      Psalms138

      I am alk +… praise God!!! My doc is a pretty straight forward blunt kind of person. I really like her. That is why I was so shocked that she seems to be taking this so lightly... but in retrospect, maybe 2 months isn't long to wait. I did some research on the nodules last night and I did see where it is common.... just also saw he likelyhood of it being cancer once you have had certain types of cancer...lymphoma being one... I have a benign mass on my ovary and am going to see gynocologyst next week... going to run a few things by him just to put my mind at rest. I agree worry isn't good!!! I have to find peace with this ... 2 months of worry wont do me any good. Positive mindset! I will beat this! Thanks guys!

      almost 5 years ago
    • po18guy's Avatar
      po18guy

      Before tomorrow can be a problem, you must first wake up tomorrow. And, even if tomorrow does become a problem, don't fret, since it will be gone by tomorrow. Turn to your faith as deeply as you can. Faith has sustained me through this journey, removing the fear. You are right, ALK+ makes a huge difference in your outcome. Let the Holy Spirit be your Consoler and all will be well.

      almost 5 years ago

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