• I have had a double mascetomy, triple negative,BRCCA 1 positive. My doc tells me I don't need an MRI anymore 4 screening, is this true ?

    Asked by Bulldogdarc on Thursday, September 20, 2012

    I have had a double mascetomy, triple negative,BRCCA 1 positive. My doc tells me I don't need an MRI anymore 4 screening, is this true ?

    11 Answers from the Community

    11 answers
    • karen1956's Avatar

      I had a bilat with recon...but I'm ER/PR+ and BRCA-.....my onc does not do any scans unless the patient is symptomatic or requests the scan...for me this is okay....I have enough anxiety leading up to my appts....had a 6 month check up last friday and was a mess!!!! I don't think there is one standard protocol regarding follow ups...my onc does tumor markers, cmp and cbc plus a physical at each exam.....

      over 8 years ago
    • Bulldogdarc's Avatar

      Thank you because my onc only has done physical exam thus far, no blood work whatsoever. This is great information, thanks again !
      I too am a wreck before appts....

      over 8 years ago
    • nancyjac's Avatar

      Well since you have had a double mastectomy you no longer have breasts to scan, so a breast MRI is not only unneeded, it would be impossible.

      over 8 years ago
    • lynn1950's Avatar

      Once you've had a bilateral mastectomy, you won't need an MRI for screening. You should have bloodwork and possibly an annual lung xray. Some people get tumor markers - I don't. My onc doesn't think they are reliable. You may get an MRI if you have persistent, unexplained pain, to rule out recurrence.

      over 8 years ago
    • ErinJ's Avatar

      I am BRCA II + and ER/PR + and had a double mascetomy, chemo, radiation- the works! I had two doctors with conflicting opinions and I chose to have screenings every six months for the first two years after treatment. Mine were PET/CT and I stopped when I learned how much radiation was in the scan! Not that we are a numbers, but statistically the survival rate does not increase comparing reoccurances found by scans vs. physical symptoms. But we are people, not statistics, so one of the main reasons I stopped was because the screens just caused anxiety leading up to the tests and as I was waiting for the results.

      over 8 years ago
    • osu2sum's Avatar

      I'm also triple negative, BRCA1 positive and had a double mastectomy. And the only thing I've been told is possible is to have blood tests for the next 5 years. The thing about our cancer is that the next 5 years are the critical time when it could come back. So you do need to continue screening - every 3 months for the first 2 years, every 6 months in year 3-5. Good luck! Carol Ann

      over 8 years ago
    • ruthieq's Avatar

      I had a double mastectomy as well and now I get chest xrays. I had Inflammatory Breast cancer, which is highly aggressive, but unless you have symptoms, it is better to have less scans etc than more. If a chest xray shows up something, then they can do the MRI. No need to go thru all that for screening...

      over 8 years ago
    • jenniferk's Avatar

      I had bilateral mastectomy with immediate reconstruction for triple neg breast cancer April 2010. Found cervical cancer reoccurance so I was treated with chemo/radiation which were done at the same time. My body rejected the expanders. They were removed and I healed up just in time to start my breast cancer chemo. My doctors recommended radiation since I had 3 positive lymph nodes. My oncologist started out with bloodwork including tumor markers and a pet scan every 3 months. Now I am doing the bloodwork with tumor markers and pet scans every 6 months.

      over 8 years ago
    • debco148's Avatar

      Had just one mastectomy.. left. My onc told me I'll alternate mammogram and MRI only on the right side since no breast tissue on the left side. She also does full cbc to insure liver and kidney function are ok. I, too, am concerned about the limited ways they do follow up with breast cancer. No scans, etc. I've questioned this as well. Seems that physicals, blood, etc are standard. I do believe self check is also prudent.. keep track of what you feel .. any pains etc that make you uncomfortable. Even though mastectomy there is still concern in lymphs and chest wall. My radiologist showed me a good self check .. under arm, near collar bone, and top of rib area. My best to you.. D

      over 8 years ago
    • SueRae1's Avatar

      Well - based on my experience I would say you should still get MRIs at least once a year - or other scans to make sure the cancer has not spread. I had a nephrectomy in Nov 1995 after 10 years of mostly CT scans, we switched to monitoring my surviving kidney with a yearly sonogram.. in 2009 they found a large cyst on the kidney. To verify that all was ok I had a CT with/contrast - the good news, just a cyst and gone, the bad news - specs on my liver - turned out to be 5 renal cell carcinoma lesions. Cancer is tricky it can hide for years or metastasize quickly. in 2010 I had a lumpectomy and radiation trip for triple negative BRCCA negative. This April the MRI of my liver found a small rim cell triple negative lesion. So I say make sure that you are having regular MRIs Better to be safe then sorry. Early detection is the means a better outcome.

      over 8 years ago
    • SueRae1's Avatar

      BTW my cancer markers were all negative when the lesions where found.

      over 8 years ago

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