• I have had a double mascetomy, triple negative,BRCCA 1 positive. My doc tells me I don't need an MRI anymore 4 screening, is this true ?

    Asked by Bulldogdarc on Thursday, September 20, 2012

    I have had a double mascetomy, triple negative,BRCCA 1 positive. My doc tells me I don't need an MRI anymore 4 screening, is this true ?

    11 Answers from the Community

    11 answers
    • debco148's Avatar
      debco148

      Had just one mastectomy.. left. My onc told me I'll alternate mammogram and MRI only on the right side since no breast tissue on the left side. She also does full cbc to insure liver and kidney function are ok. I, too, am concerned about the limited ways they do follow up with breast cancer. No scans, etc. I've questioned this as well. Seems that physicals, blood, etc are standard. I do believe self check is also prudent.. keep track of what you feel .. any pains etc that make you uncomfortable. Even though mastectomy there is still concern in lymphs and chest wall. My radiologist showed me a good self check .. under arm, near collar bone, and top of rib area. My best to you.. D

      almost 9 years ago
    • SueRae1's Avatar
      SueRae1

      Well - based on my experience I would say you should still get MRIs at least once a year - or other scans to make sure the cancer has not spread. I had a nephrectomy in Nov 1995 after 10 years of mostly CT scans, we switched to monitoring my surviving kidney with a yearly sonogram.. in 2009 they found a large cyst on the kidney. To verify that all was ok I had a CT with/contrast - the good news, just a cyst and gone, the bad news - specs on my liver - turned out to be 5 renal cell carcinoma lesions. Cancer is tricky it can hide for years or metastasize quickly. in 2010 I had a lumpectomy and radiation trip for triple negative BRCCA negative. This April the MRI of my liver found a small rim cell triple negative lesion. So I say make sure that you are having regular MRIs Better to be safe then sorry. Early detection is the means a better outcome.

      almost 9 years ago
    • SueRae1's Avatar
      SueRae1

      BTW my cancer markers were all negative when the lesions where found.

      almost 9 years ago

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