• I have had several people tell me that losing their hair was the worst part of the whole chemo process.

    Asked by GregP_WN on Sunday, August 18, 2019

    I have had several people tell me that losing their hair was the worst part of the whole chemo process.

    What do you say was the worst part of the whole process?

    Hair loss
    Weight loss
    Not being able to eat
    The change if your life and family schedule
    Another/other side effects or issues (please list)

    For my first chemo rounds I would have to say nausea/sickness first, and eating problems second.

    16 Answers from the Community

    16 answers
    • JaneA's Avatar

      Fatigue and neuropathy/cold sensitivity.

      3 months ago
    • Saw4750's Avatar

      Uncontrollable diarrhea and vomiting.

      3 months ago
    • Bengal's Avatar

      Hair? Not even close. I would say the extreme nausea, loss of appetite and having to force myself to eat. The weeks I was given neulasta this intensified big time.

      3 months ago
    • Kp2018's Avatar

      Sleep deprivation from all of the steroid drugs. That really affected my quality of life.

      3 months ago
    • cllinda's Avatar

      Hair loss was mine. I hated being bald. Wore lots of pretty scarves and hats. Just felt like a freak bald.

      3 months ago
    • Skyemberr's Avatar

      I'd say that for me it isn't the hair loss. It's uncomfortable, but at least people usually understand why your hair is gone when they see a cancer patient these days. It is very sweaty to have no hair. I'm not liking that much.

      I don't like the feeling of utter sickness and enfeeblement that I experience which is keeping me almost entirely in bed and unable to do simple tasks like make a couple of pieces of toast and a scrambled egg.

      Some of that is coming from the super high steroid dose I've been on though and as a result of following on the chemo with 5 days of of SBRT.

      It's worth it though apparently because I got my CEA numbers today and they fell 13 points! This is the first time my numbers have gone down in a good way in a couple of years, so hooray for that.

      3 months ago
    • beachbum5817's Avatar

      For me it was the hair loss. I know that others think that is very shallow, but I hated that it screamed that I had cancer. A very close second on my list is the permanent neuropathy. @Skyemberr, I am so glad to hear that your numbers are going down. Congratulations!

      3 months ago
    • MiriamMarino's Avatar

      I didn't care about losing my hair. I figured it would grow back eventually if I lived long enough.
      I was only concerned about not being able to fully live due to the side effects of chemo.

      3 months ago
    • Paperpusher's Avatar

      It was so hard on hubby when he lost his hair. He's always been very vain about his hair using much more hairspray than any five women I knew. But if you ask him now it was the nausea and debilitating fatigue that was worse. His hair grew back beautifully. His energy levels haven't rebounded as well.

      3 months ago
    • Dkatsmeow's Avatar

      Inablility to swallow and little no voice. The left side of my throat was paralyzed when they cut a nerve to remove the cancer. I wake up every morning hoping for a miracel. No luck yet.

      3 months ago
    • omaalyce's Avatar

      Losing my hair was not a big issue for me although all my family and friends thought it would be. I have always been a stickler for my hair to look nice so everyone was worried about it. I really didn't care as I knew it would grow back although I had no idea how different it would be. When I first noticed it growing back I told my husband and he rubbed my head and promptly declared he has his own Chia-Pet-I laughed so hard my eyes watered. For me the worst part was loss of energy and the neuropathy in my hands and feet which I still have two years later. And chemo brain, I have to ask everyone, "did I tell you that already"-I hate it. My energy levels are still not back and I hate that but I'm working on it.

      3 months ago
    • Phoenix76's Avatar

      I tried to look on the positive side of the hair loss - hey! quick showers! no shaving! Get to wear snazzy hats and scarves! But, the biggest issues were fatigue and chemo-brain. Still feel the effects; learned to cope by writing myself a lot of reminders when I think of something, knowing that I might not remember it later. And, trying to exercise more to combat the fatigue.

      3 months ago
    • Boogerman's Avatar

      Hair grows back, it should not even be an issue for anyone when your life is on the line. For me, the worst part was about 3/4 of the way through chemo when I thought that I couldn't do it anymore. I was beaten down bad. But that was the lowest point and I crawled out of the pits of XXX and survived.

      3 months ago
    • smlroger's Avatar

      Last chemo left me with neuropathy in feet and some in hands that continues. Recovered from fatigue and most of hair has grown back but no as it was.

      3 months ago
    • earthgirl's Avatar

      When you first lose your hair, it might seem like the worst part. But when mine shed a few days after beginning chemo and I felt nauseous, tired, had a metal taste in my mouth that never went away, and I felt apart from myself, well, then the hair that could grow back didn't seem so bad in perspective. It's different for everyone. I fear neuropathy as I get ready to start the next twelve treatments on Monday. I finished Adriamycin and Cytoxan. Taxol is next. Fingers crossed that these side effects won't be worse than I've already had.

      3 months ago
    • kalindria's Avatar

      I hated losing my job - a job I loved and had worked very hard to reach. I stayed out on leave as long as I could but eventually had to admit I wasn't going back. Sigh.

      I hated being sick, throwing up and being constipated. I hated being in severe pain. I hated that my world shrunk down to the size of my bedroom and my life was on standstill.

      Hair? No. I hardly missed it.

      3 months ago

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