• I have HORRENDOUS lymph edema on the right side of my body. I wear compression gear and do the exercises, any other ideas to make it go away

    Asked by Janet on Monday, April 30, 2012

    I have HORRENDOUS lymph edema on the right side of my body. I wear compression gear and do the exercises, any other ideas to make it go away

    My body is swollen from boob to toe. More Lymph nodes were removed on the left than the right. I just don't get it why the right side and the right side radiation on my abdomen is making it worse.

    4 Answers from the Community

    4 answers
    • Lirasgirl33's Avatar

      All I know is this has to do with the lymph nodes and blockage or damage to the lymph vessels. Swelling occurs because the lymph vessels are unable to carry the lymphatic fluid away from tissues. Radiation can make it worse. Please let your doc know of this asap as can lead to bigger problems. Or have you already?

      Any of us who end up having surgery to remove lymph nodes have a higher chance of experiencing lymphedema, and going through radiation/chemo increases the chances.

      over 4 years ago
    • Keephopealive's Avatar

      After many rounds of chemo my right leg began swelling too. Got huge and I did have a blood clot too. They do think there are some cancerous lymph nodes and now the new chemo is working on them and the leg is going down somewhat but not anywhere near normal. I had lymph nodes removed 12 years ago and they say it can always come back to get you!
      My leg fluctuates, sometime it isn't so bad and other days it is very hard and swollen. Life sucks sometimes.

      over 4 years ago
    • jamrck's Avatar

      By all means, let your doctor know. Also there are massage therapists who specialize in lymphatic massage and working with cancer patients. See if you can get a referral.

      over 4 years ago
    • jenniferk's Avatar

      I have trouble with lymphedema also. Garmets and the lymphedema exercises don't control mine. My gynocologist referred me to a vascular doctor. She prescribed a compression suit that I put on one to two times daily depending on the swelling. The suit works great. You still have to do your exercises but it has really helped me. It is time consuming. Takes an hour for each leg and another hour when my arm swells. You can experiment with how often you need to use it. It is a machine that is designed to empty the lymph nodes and then move more lymph into them. It is called a flexitouch system. It was very expensive but my insurance picked up most of the charge. UPS delivers it to your home and then Flexitouch send someone out to teach you how to use the machine. Once again time consuming and you need to lay down while doing it. I sit in my recliner and relax and watch tv while using the machine. I have looked up lots of information on lymphedema and have never seen this option listed on any sites. I love it. It has really helped me. One other question. Do you take any of the statin drugs that are used to lower cholesterol. I used to. My vascular doctor had me change mine to a different type of cholesterol lower medicine. She says the statins can cause more swelling in patients with lymphedema.

      about 4 years ago

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