• I have metastasized colon cancer in my lungs that has been very stubborn. Starting my third round of chemo tomorrow. I have already had 24chemo treatments. Does anyone have experience with this? Very little in the literature about this.

    Asked by Okiegrandma on Monday, November 12, 2012

    I have metastasized colon cancer in my lungs that has been very stubborn. Starting my third round of chemo tomorrow. I have already had 24chemo treatments. Does anyone have experience with this? Very little in the literature about this.

    17 Answers from the Community

    17 answers
    • SpunkyS's Avatar
      SpunkyS

      I can't answer your question. I can admire your determination and offer support.

      almost 5 years ago
    • Peroll's Avatar
      Peroll

      In 2007 my colon cancer merastasized to my lungs with one tumor in each lung, which sounds similar to your situation. When cancer is in more than one place they tend to assume that is is in several placed that they have not located yet thus they go with chemo, the wide area treatment approach to try and kill it not only where is is known to exist.

      After about 9 months of chemo my tumors were stable (the same size) and there was no evidence of cancer anywhere else in my body, again this sounds similar to what you describe. At that point I grew tired of weekly chemo days and the side effects so I began to question my Oncologist about what else could be done. I looked at surgery and raidiation based treatments including radio Ferquency Abalation. Tumors in lungs can be tricky things. The one in my left lung was at the edge of the lung so it was easy, but the one in the right lung was in the middle near some arteries. The surgeon proposed a wedge resection laproscopically using a wire location technique for the left lung and removing the upper (of three) lobe of my right lung. I opted for this apporach and had two seprate surgeries planned. Afther the first surgery my surgeon was so impressed with the size of my chest and how much room there was (I am 6' 5" and have a 50" chest at my ribs) That he decided that he could do the right lung with the same procedure as the left lung. Thus my right lung still has most of its upper lobe.

      Bottom line is I would recommend talking to your Oncologist and getting referals to the other sprecalists (surgeon and radiation oncology) that might be able to help your situation . Remember the more questions you ask the better. Get them to think outside the box. Your cancer can be beat.

      If you have any other questions for me let me know.

      almost 5 years ago
    • Jane's Avatar
      Jane

      I had that...twice...the first time I had shaped beam radio therapy which took away the tumor. The second time it came back in the scar tissue so I had to have surgery. Both were successful. I don't have chemo anymore. If you have questions I would be glad to answer them.

      almost 5 years ago
    • Carol-Charlie's Avatar
      Carol-Charlie

      Hi Okie Grandma... I'm a MINI Grandma.. (Minnesota) and Great Grandma too... we're the same age... so don't think you can stop fighting... Cause we and the doctors want you to win this war. I was diagnosed with Stage IV Ovarian Cancer seven years ago. Surgery and almost two years of chemo.... I'm CANCER FREE!!!! Have been for six plus years. Place your hand in God's and let Him lead you through the treatments.... He'll lead you to where He wants you to be. And He wants nothing but the best for you. Being 69 also... I know you can do this! I'm here is you need some cheering from the sidelines... I know I did!

      almost 5 years ago
    • Carol-Charlie's Avatar
      Carol-Charlie

      Hi Okie Grandma... I'm a MINI Grandma.. (Minnesota) and Great Grandma too... we're the same age... so don't think you can stop fighting... Cause we and the doctors want you to win this war. I was diagnosed with Stage IV Ovarian Cancer seven years ago. Surgery and almost two years of chemo.... I'm CANCER FREE!!!! Have been for six plus years. Place your hand in God's and let Him lead you through the treatments.... He'll lead you to where He wants you to be. And He wants nothing but the best for you. Being 69 also... I know you can do this! I'm here is you need some cheering from the sidelines... I know I did!

      almost 5 years ago
    • tombo's Avatar
      tombo

      eat healthy,,i dont even know how many chemo treatments i have had,,over 100 for sure,,i am still here!!!,,i do chemo every 3 weeks now,,its been a year and a half,,i know it hurts really bad sometimes,,just keep going,,i visualize my good cells killing my bad cells,,and believe it or not,,,i laugh alot,,have a nice holiday,,,mike

      almost 5 years ago
    • tombo's Avatar
      tombo

      keep laughing

      almost 5 years ago
    • Okiegrandma's Avatar
      Okiegrandma

      Thanks for all your answers and support. Dr. Says I am not a candidate for surgery or radiation since tumors are multiple and small. Pet scan looks like buckshot rounds. Had some kind of spell yesterday when I went to have pump removed. Felt like I was going to faint, got all shaky with tremors. Finally went away and I came home and went to bed the rest of the day.

      almost 5 years ago
    • Knockonwood's Avatar
      Knockonwood

      Sounds like you may be experiencing some anxiety (and rightly so). I am in kindof the same situation, but have only had 16 chemo treatments. Since the tumors are no longer shrinking, I have started on a maintenance protocol with 5FU + Avastin. See if you Dr. will prescribe Ativan for the anxiety. It has helped me.

      almost 5 years ago
    • Poraku's Avatar
      Poraku

      Colorectal cancer in your lungs ?! - Never heard about such a possiblity...Do you mean it has spread to your lungs already? Please write more about it. Mark

      almost 5 years ago
    • PhillieG's Avatar
      PhillieG

      Hi Okie!
      I've been dealing with Stage IV Colon Cancer basically non-stop since Feb 2004. At the time of my DX, my liver and lungs were "involved". At this point in my journey, my lungs are STILL involved. I get small growths that I've been able to be removed via RFA (an ablation where they basically fry the tumor). Not to depress you but I've had well over 300 treatments. The drugs I've been on for the past 5+ years have been Erbitux and Irinotecan which are more targeted therapies and are a bit easier to take (relatively speaking).

      While I do still have one or two small tumors in my lungs, the thing I'd like to have you see is that it's really possible to Live WITH Cancer. My quality of life is quite good most of the time. Of course after I get my treatment every two weeks, I get pretty tired and will sleep or rest a lot. But after those first couple of days I do feel much better and life goes on. If this was 15-20 years ago, I seriously doubt I'd be writing you.

      I have one of the best oncologists in the country and my entire team has been wonderful. People like me, and possibly you (hopefully you and I will be CURED) are part of a new group of cancer patient. People with cancer who are dealing with it like it's a chronic disease. While it's not perfect, it's better than some other ways this could have played out.
      Please feel free to ask me any questions.
      -phil

      almost 5 years ago
    • NMbelievesLR's Avatar
      NMbelievesLR

      My best friend went a year and half with many many rounds. Her positive attitude an smiles helpped us all! However none of the chemo worked due to the fact she got the colon cancer from treatment from a childhood cancer and has left us a little over a week ago. Surgery was not a option but neither was radiation for her!

      almost 5 years ago
    • ibcarolek's Avatar
      ibcarolek

      Phil, I admire your strength -8 years and going strong - awesome! Are you able to work, or are you on disability? My significant other has stage 4 colon/liver/lung. We've now figured out how to navigate day to day, but we can't figure out the future - how to plan finances and the like. We've been advised to apply for SSDI, as it can take 2 years to get it. He's feeling better now, and so we didn't - but his cat scan just came back with "good news" - nothing grew but nothing shrank. We're confused as we though 'feeling better' (at least in non-chemo weeks) meant getting better. As you can see I'm lost and at best scared as it appears nothing has changed.

      almost 5 years ago
    • Jane's Avatar
      Jane

      I had colon cancer inmy lung--twice. The first time I had shaped-beam radiation. The second I had to have surgery because it came back in the scar tissue. The radiation has been a life saver and little to no side effects.

      almost 5 years ago
    • alivenwell's Avatar
      alivenwell

      Read 'Natural Strategies for Cancer Patients'. It has some excellent information.

      about 4 years ago
    • alivenwell's Avatar
      alivenwell

      Has anybody read the latest Newsweek about living a long life and future uses of detecting and accurately treating disorders like cancer up front?
      Good food for thought!

      about 4 years ago
    • tinagleim's Avatar
      tinagleim

      24 chemo treatments - you poor thing. I just started my second round (#13) since it went from stage 3 to stage 4 to my lung. How do you feel physically and mentally? I am sending you a big gentle hug. Guess the goal of chemo sometimes is to keep the cancer from growing or reducing it's size. Your cancer does sound very stubborn. I think that there are 8 different chemo drugs for stage 4 - have they been trying different ones? I pray that my cancer cells are destroyed by my initial chemo drugs. Ask your cancer Dr where reliable info is - get second opinion regarding your treatment. That is what I would do. So glad you are educating yourself. Get's mind blowing sometimes doesn't it. Some days my mind can handle it and some days not. I have a oncologist nurse that I can call anytime and she is so helpful - I hope you would have someone like this. My insurance pays for her service - to answer all my questions. I have been giving her a mental workout - which she seems to like and appreciate so far. Please keep me posted.

      about 4 years ago

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