• I have non small cell lung cancer stage 3a, and I have been in remission since December. I just had my second PET scan and they said there

    Asked by snuzsuz on Tuesday, February 5, 2013

    I have non small cell lung cancer stage 3a, and I have been in remission since December. I just had my second PET scan and they said there

    there is a new spot but it is less than 1 cm, and there is NO activity! My next PET scan is in 6 months!
    Has anyone had a new spot after being in remission, and what exactly does that mean?

    10 Answers from the Community

    10 answers
    • nancyjac's Avatar
      nancyjac

      It means exactly what you said. You have a new spot which could be a temporary inflammation, enlarged lymph node, benign tumor, or any of a hundred other things that are not cancer. Just in the past few months I have had two new lumps, one diagnosed as a seroma (harmless fluid filled pocket) and an enlarged lymph node in my groin that is being monitored to see if it is just a temporary fluid build up or if is still there or has grown in 6 months.

      over 4 years ago
    • snuzsuz's Avatar
      snuzsuz

      Yay! Thank you! What a relief to know it is probably nothing:)

      over 4 years ago
    • Peroll's Avatar
      Peroll

      Half the population will show spots in the lungs or liver in scans and the vast majority of them are not cancer. When you get a PET scan they also do a CT scan and that is what probably saw the "spot" but it apparently did not show up on the PET portion that see metabolic activity which is normally high for active cancer. This is good news because you have evidence that indicates it is probably not cancer or that if it is it might be dead already. Good Luck

      over 4 years ago
    • bronxboy's Avatar
      bronxboy

      Nancyjac & Perol are correct. I've had one or two spots in or around my lung for about six years.
      Nothing about them has changed, and Dr. says it's nothing to be concerned about.
      Stay Well,
      bronxboy

      over 4 years ago
    • snuzsuz's Avatar
      snuzsuz

      Thank you! I feel so much better hearing all your answers:)

      over 4 years ago
    • CAS1's Avatar
      CAS1

      My Doctor, a Lung cancer expert, is not a fan of Pet scans because they pick up inflamation so i get Ct scans every 3 months and a Brain MRI. My next scan is 2/13 and getting abit nervous. will have them for another year since I am told 85 % of lung cancer returns within the first two years. Then i will reduce the scans to every 6 months.
      I am a 1 year survivor of andenocarcinoma IIIB..Chemo,Radiation,Surgery,Chemo. Treatment ended in November 2012. DX February 2012.

      Did 80 minutes and 4 miles on the tread mill yesterday..

      over 4 years ago
    • MaryTD777's Avatar
      MaryTD777

      I also just went thru this. We stuck with CT scans the 1st 3 times to more accurately watch the size, PET can't even dx a spot smaller than a cm. Had mine been a worry, it would have been bigger than a cm by my Jan 24 scan and it wasn't so YAY me too :-)

      I have been cancer free since 8/15/11. So far, the scanxiety never gets easier, but the elation after the doc says NED gets better each time!! I am still on 3 month schedule too, but may go out to 6 if my April CT scan is good. At almost 18 months (Friday) NED I try to convince myself I am headed down the same road as my pal. He was Dx NSCLC IIIB Pancoast tumor 11 years ago. YES, I said ELEVEN YEARS AGO.

      Chin up y'all!

      over 4 years ago
    • snuzsuz's Avatar
      snuzsuz

      Congratulations to both of you! And thank you for your responses! I guess the fear never goes away. But I feel much better after reading everyone's responses!

      over 4 years ago
    • CAS1's Avatar
      CAS1

      May I just say something about Lung Cancer stats.
      1. The biggest progress in Lung cancer has been in the last 5 years. That data has not even touched the stats yet to make them move in the right direction.
      2. More than 50% of peopel DX'd are too sick to take treatment.
      3. Between 1998 and 2008 the number of people treated for stage ! and !! disease actually went down ( Number of resons for that).
      4. More than 45 % of people dx'd are still heavy smokers..big influence on outcome and survival.
      5 More than 50% of people of color don't get treatment ( awful situation which effects stats).
      And thats just what me a laymen has determined so you know there is alot of data effecting the stas that I don't know of.
      Just remeber how all this data skews the numbers.

      over 4 years ago
    • snuzsuz's Avatar
      snuzsuz

      Thanks for the stats, very interesting! So, I'm not the only one out there with lung cancer that can't seem to quit smoking! I am so ashamed that I am in remission and still smoke. I have tried a hundred times in the past year to quit, only to start up again. I have tried, literally, everything out there that there is to quit, except hypnosis, and when I get the money, I will try that too!

      over 4 years ago

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