• I have noticed alot of people don't know if they are her2/er/pr positive or negative. I found out right away, since this helped with knowing

    Asked by cris on Saturday, January 12, 2013

    I have noticed alot of people don't know if they are her2/er/pr positive or negative. I found out right away, since this helped with knowing

    how to treat my type of cancer, which ended up being triple negative. I was told I couldn't be treated the same as someone w/her2/er/pr positve so this was really important to know. Just was wondering. thanks

    6 Answers from the Community

    6 answers
    • nancyjac's Avatar

      I suspect a lot of people hear "cancer" and don't absorb any of the details beyond that. I have always kept a copy of my own medical records so I have copies of all of pathology reports. Also, specific to HER2, identifying that receptor is relatively new. When I had my first cancer 18 years ago, it didn't exist. So some of the long term survivors on this forum may not have had that option. Whether the patient knows it or not, their oncologists certainly do and develop treatment plans accordingly. The difference is that those that are HER2, ER, and/or PR positive have additional freatments, but chemo, surgery, and radiation treatments for them may be the same as those that are triple negative.

      almost 4 years ago
    • SueRae1's Avatar

      I was told when I got my diagnosis "The results came back for Triple Negative invasive ducal cell carcinoma" After the cancer metastasized to my , we got the first cut result in 3 days (instead of the usual 7-8) which told us the lesion was Breast Cancer. When my doctor called to let me know my treatment plan, he told me that it too was triple negative (some times metastasized breast breast cancer does not have the same profile as the primary)

      almost 4 years ago
    • Loafer's Avatar

      Funny you say this. I received results back for ER and PR right away. Significant delays in getting the Her portion back. Finally got all three back and then had two different labs test with different results. One lab said triple negative and one lab said slightly positive for ER. (Less than 2% Er+). Ultimately, after a lot of retesting settled on triple negative which determined the chemo plan. Tested negative for BRCA gene. Don't know if this slight amount of ER+ means anything or not.

      almost 4 years ago
    • Nomadicme's Avatar

      When the BC is DCIS many insurance companies don't cover Her2 staining, so women don't know as they're not told. With higher stage BC it's important to know if you want to understand the reason behind receiving certain types of treatment.

      almost 4 years ago
    • gwendolyn's Avatar

      If you're talking about people on this site, a lot of people just haven't filled it in and the site defaults this to "Don't know."

      almost 4 years ago
    • karen1956's Avatar

      I found out right away too....after the biopsies and then my bilat...it affected what my tx protocol would be...I'm ER/PR+ and Her2 Neu -

      almost 4 years ago

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