• I have Stage IV small cell lung cancer with EGFR and Exon 20 mutations. Does anyone on this site have this cancer?

    Asked by RhondaM on Wednesday, December 2, 2020

    I have Stage IV small cell lung cancer with EGFR and Exon 20 mutations. Does anyone on this site have this cancer?

    4 Answers from the Community

    4 answers
    • JaneA's Avatar
      JaneA

      Being EGFR-positive means that there are targeted therapies specific for the EGFR mutation. We see EGFR-positive in colorectal cancer too and some other cancers. I'm not sure about Exon 20 mutation. Best wishes as you learn more about your treatment options.

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      You're cancer is small cell lung cancer or non-small cell? I thought EGFR was a non-small cell mutation, but maybe it is both. Jane is correct that there are special therapies available for EGFR (with non-small cell lung cancer - I'm not sure about for small cell ...) I have heard of the Exon 20 mutation but must admit I have forgotten what I knew about it...

      My lung cancer is stage IV, but is non-small cell and I had no mutations (though did have high PDL-1).

      Best of luck!

      about 1 month ago
    • Paperpusher's Avatar
      Paperpusher

      My husband has small cell lung cancer but small cell is staged by limited, which his is, or extensive. Could you perhaps have non-small cell. That would explain the staging and the EFGR mutation positive notation. There are so many more treatments for non-small cell and as the others have mentioned some are targeted. I've never heard of the Exon 20 mutation.

      about 1 month ago
    • PRINCE's Avatar
      PRINCE

      caregiver for NSCL lung cancer stage III - radiation and chemotherapy completed. aftereffects include neuropathy and pleural effusion.

      7 days ago

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