• I have survived cancer yet I don't know how to survive!!

    Asked by lchapman2000 on Tuesday, January 1, 2013

    I have survived cancer yet I don't know how to survive!!

    I am in constant pain. I have constant bone and joint pain. I can no longer digest foods as a result of the gastroparesis that I now have resulting from chemo and radiation. I have chronic migraines. There is not a day that goes by that I am in not in pain. I am no longer being treated by my oncologist because I am in "remission". So...who do I turn to now? I feel like I have been passed around like a rag doll and I just want the pain to go away. I am tired of living in pain. I can't take much for the pain because any NSAIDS or narcotics will further aggravate my stomach. I feel like I am trapped in a body that has been ravaged by the drugs that were supposed to spare it. I am here but my quality of life isn't. So, where do I go for help? Who helps now? None of the doctors seem to care or understand just how much pain I am in. I am not just looking for medicine. I want the pain to end.

    8 Answers from the Community

    8 answers
    • carm's Avatar

      Hello, I am an oncology/end of life nurse and you have two options. You can ask for either a pain management consult or a palliative consult. Both of these docs will handle the pain while your oncologist handles his part when necessary. You can get the consult order from either your oncologist or your internist. Best of luck to you, Carm.

      almost 4 years ago
    • gwendolyn's Avatar

      I'm sorry things are going so poorly for you. No one should have to endure constant pain. Your quality of life is important. Follow Carm's advice and don't settle until you've found a doctor who helps you.

      almost 4 years ago
    • mjs24's Avatar

      I am so sorry to hear of your constant pain, it must be awful. I finished chemo in August 2011 and my oncologist is still seeing me. Not sure why you are not...the vitamin approach as suggested is a good start. I used acupuncture during treatment and believe it helped. Try alternative doctors as the MD doctors are not helping you. Try other Drs out of your area but keep trying. One of them will be able to figure out what is going on with you, don't give up!

      almost 4 years ago
    • papayagirl's Avatar

      I am so sorry that you are struggling with so much pain. I had bone and joint pain during chemo when I was having Taxotere and Cytoxan. Also, my oncologogist said I would have bone pain with the hormome I am taking (Anastrazole, generic for Arimidex). I have only just begun it so I don't know what it will do. Hang in there and don't let the doctor dampen your hope. Keep trying. I hope 2013 will bring relief and many blessings.

      almost 4 years ago
    • Harry's Avatar

      As noted above, you have two options and you can pursue both simultaneously.

      1. Find a pain management specialist. You primary care doctor may be able to help with a referal.

      2. Check out complementary therapies. These are things like acupuncture, reiki, meditation, yoga, even prayer. Some may sound very weird to you (some sound weird to me) but others report success with one or more of them. Try out different ideas and see if any help. I can't offer a scientific basis for any of these things, but if one or more helps, then you are better off.

      almost 4 years ago
    • Clyde's Avatar

      Don't give up. This is one place I would consider alternative and natural therapies (on condition that you are not taking chems of any sort that might conflict). Talk to you dr plainly. Exercise is a great way to fight pain and to heal in general (walking can do wonders). Work through the pain and it will help you sleep which is also a great way to heal. Diet (a good diet) is important. I know its hard, but since you have taken the cancer down, this is not the time to stop fighting.

      almost 4 years ago
    • Nomadicme's Avatar

      I'm with the other posters,don't give up, seek treatment. Pain management is a field all of its own. I've read that Botox injections are given for migraine, that way you don't have to take anything systemically. Also try yoga, it helps with pain (walking, any exercise will help too). I understand antidepressants work for fibromyalgia. Only a Dr can diagnose any/all of these and help.
      I too feel a bit lost without the attention I was getting during cancer treatment. These boards and lie meetings with other survivors help a lot. And exercise/yoga, truly live saving.

      almost 4 years ago
    • lchapman2000's Avatar

      Thank you all for your incredibly encouraging words! I am not ready to throw in the towel yet. I just need some relief from the constant pain. I am waiting for a surgeon to implant a gastric stimulator to help with the pain from the gastroparesis and help me be able to digest food again. I know that I am dealing with issues from malnutrition at this point. That is exacerbating the condition. I have basically been living on water for a month and my body doesn't like it. I miss the days where my oncologist coordinated my care. Trying to do it all myself is definitely much harder. I pray that this year brings some relief.

      almost 4 years ago

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