• I have Thyroid Cancer. Had my Throid removed 3 weeks ago, to find out that the Cancer is still in my left side. Lost and confused, what next

    Asked by TraciD on Monday, July 16, 2012

    I have Thyroid Cancer. Had my Throid removed 3 weeks ago, to find out that the Cancer is still in my left side. Lost and confused, what next

    4 Answers from the Community

    4 answers
    • GregP_WN's Avatar

      Still in left side of your throat? I do know the feeling you have. I had a tonsil that was malignant, had two surgeries to remove the tonsil, surrounding tissue, then a radical neck disection, then was told I had a spot on my colon. The ups and downs are terrible. Take the whole process one step at a time, get the thyroid issue done, move on to the next process. I have been diagnosed 3 times over the last 24 years. Always have that wonder, fear, that it will return again. But I dont sit and worry about it, that's counter productive, I look at it as a hundred little battles, take each one as they come, good luck to you!

      almost 9 years ago
    • emsavard's Avatar

      Did you have a total thyroidectomy or just the right side removed? You will be scheduled for surgery again. Did they remove some lymph nodes? If thyroid cancer cells are found in the lymph nodes or the doctor feels that there may be some thyroid tissue remaining, you will likely need to have a radioactive iodine treatment. You are not alone. Join a thyroid cancer forum such as http://www.inspire.com/groups/thyca-thyroid-cancer-survivors-association or the forum at www.thyroidcancercanada.org You will get lots of helpful information at these sites and your questions answered. Allow yourself to vent your frustrations, do not keep them inside.

      almost 9 years ago
    • hgbkokopelli's Avatar

      I have thyroid cancer also. I had some cancer outside the capsule and the lymph nodes were negative. I don't think from what all I have heard from other cancer patients here that they can get it all, no matter how good a surgeon they are. I am going to CTCA in 2 weeks for some evaluation and treatment and I hoe they can get rid of it. I am a nurse and retired with my diagnosis as I needed my cup filled as I took good care of all the patients I cared for in 40 years. Don't feel all alone being lost, I am in your shoes. But remember the squeaky wheel gets the oil so let them know you are adiment about getting rid of this. I said what next also and then took the bull by the horns and said I want to go here for treament and how do I make it happen for insurance to help cover it. I dropped the limited benefit plan I had and my husbands group insurance is what I have and am going with. You need another opinion definately and to find someone who can help you. I have waited since Dec.,11 for 9 months now to get to CTCA for positive treatment etc. And I want their help as they treat the whole person not just cancer. Good LUck and keep saying prayers as I have been doing it really helps me.

      almost 9 years ago
    • Ian's Avatar

      Hey Traci,

      I had my Thyroid removed as well as 6 lymph nodes and all the fatty tissue in my neck. I still have two cancerous lymph nodes in my chest. You don't say which type of thyroid cancer you have. I have medullary which is slightly harder to target as it is not the cells that take up iodine. If you have follicular or papillary type then they can pretty much clear everything out with a radioactive iodine treatment. If like me you have medullary then all is not lost. They are dealing with the remaining tumours and free floating cells with beam radiation. There is also the option of surgery and unlike some poor folks our cancer is slow moving and easy to track so surgery is always an option. I know it sounds like a cliche but turn your fear around and channel the energy into fighting, I know its can be hard, been there, got the t-shirt but I got bombarded with several progressively worse pieces of information along my journey. They have finely begun to turn around and all the more recent things have been positive. Keep your chin up and fight for you and the things you hold dear.

      I am always here if you want to talk, and happy to share the hurdles and triumphs that this kind of journey brings. You will have your own triumphs to share as well, every time something knocks you down stand up taller eventually you WILL overcome.


      over 8 years ago

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