• I have triple negative breast cancer which spread to lymph nodes under arm and both lungs had a mastectomy on 10/4/18 they removed my right

    Asked by tripleneg2018 on Friday, October 19, 2018

    I have triple negative breast cancer which spread to lymph nodes under arm and both lungs had a mastectomy on 10/4/18 they removed my right

    breast pathology came back no active cells but they say I need to do radiation

    5 Answers from the Community

    5 answers
    • beachbum5817's Avatar

      My breast surgeon told me that if more than 6 lymph nodes had cancer, I should do radiation after I was done with chemo. I had 4 in my armpit and 2 in the breast that had cancer. The radiologist agreed, and I had 28 radiation treatments. I was borderline for needing it, but chose to go ahead and do all that I could to get rid of all the cancer. Take care.

      6 months ago
    • Kp2018's Avatar

      You have been through so much, no wonder you have a question about even more treatment. But, as you already know, triple negative is a nasty sneaky cancer, so oncologists want to make sure you are rid of every single micro cell of it. That's the rationale behind what is highly aggressive treatment - to help assure it doesn't pay a return visit. Even though your right breast is gone, there is still breast tissue present which could harbor some stray cells.

      I'm going through radiation right now, and am finding it a breeze. I'm grateful for it, and I'm betting you will be, too. I wish you well.

      6 months ago
    • fiddler's Avatar

      I had TNBC. It's tricky - it 'hides' in places we wouldn't suspect. Radiation is status quo for TNBC because they don't have anything to get rid of it. It's ACT & rads, period. No ice on fingers and toes, either a/c the hiding.

      After a session, when you're dressing, slather on calendula gel (GEL) where they zapped you. It helped keep away the burns on my chest.

      6 months ago
    • MLT's Avatar

      Hit TNBC with everything you can! I was lucky with radiation, no burns. Wishing you the best!

      6 months ago
    • Pia's Avatar

      Hi. I had the same question. I had TNBC that spread to the sentinel node. I did chemo (Adryamycin and Cytoxin, then Taxol with Herceptin and Perjeta) before my double mastectomy and removal of 12 nodes under my arm. My surgery was 10/10/18. My pathology reports came back great - no evidence of cancer - but they want me to continue Herceptin & Perjeta until June 2019 and have radiation. I was baffled. I read up on TNBC some more. It is tough to kill, so even though I had great pathology report, they are throwing kitchen sink at it as there are not a ton of other treatments available. I'm meeting with radiologist oncologist next Tuesday. While I don't want to do it, I do want to take advantage of the moment and eradicate the TNBC once and for all. If you have gotten this far, you are a warrior. Take each day as it comes and fight the best fight you can. Take peace where you can. I feel good knowing I'm doing everything I can to win. Stay strong...we can do this!

      6 months ago

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