• I just found out I am non-avid and I am scared. Does anyone have insights?

    Asked by bigjan on Tuesday, February 19, 2013

    I just found out I am non-avid and I am scared. Does anyone have insights?

    2 Answers from the Community

    • carm's Avatar

      Hi Bigjan, I don't know exactly what you are looking for, but when you are non-RAI-avid you have lost the ability to take in or absorb iodine. When trying to determine if you have recurrence, a FDG PET is used because glucose is taken up instead of iodine and a watch on your Tg levels as well. If your Tg level rises it is a good indication that recurrence has occured. Usually radiotherapy is off the table, but there are some promising chemotherapies as well as peptide receptor nucleotide therapy. Your oncologist has to decide the best course of action. Just like many malignancies where patients build up an immunity to chemo and it no longer is an option; this is the same in essence with non-RAI-avid thyroid disease where radiotherapy is no longer an option. Working in oncology, I have only seen a couple of cases however, I do know that careful monitoring is best, and that there are new studies out there to address this issue. Best of luck, Carm RN.

      over 4 years ago
    • emsavard's Avatar

      May I ask how it was determined that you are non-avid? Did you have a scan and not have any uptake?
      All the best

      over 4 years ago

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