• I just had my 3rd chemo: Carbo plain, Docetaxel, Perception, and Perjeta. My kidneys were doing 'so good' that they increased my carbo

    Asked by Marty64 on Wednesday, May 4, 2016

    I just had my 3rd chemo: Carbo plain, Docetaxel, Perception, and Perjeta. My kidneys were doing 'so good' that they increased my carbo

    platin. So,bottom line, I'm doing thesis adjunct therapies to minimize organ damage. When can I tell my oncologist I don't want more chemos. (adjunct therapies: Acupuncture/cranial sacral, Donna Eden's energy medicine, chiropractic, massage, reflexology, Reiki, cod marijuana)

    11 Answers from the Community

    11 answers
    • barryboomer's Avatar
      barryboomer

      TODAY!!!!!!!!!!!!!!!!!!!

      about 5 years ago
    • geekling's Avatar
      geekling

      Right now. It is your body and, to date, no one can force you to take that which you do not choose to take, assuming you have reached the age of majority.

      I would like to know more about Donna Eden, if you dont mind.

      A doctor can pressure you to do this or do that but if you do not trust his advice, like Nancy Reagan, just say no and talk to an independent other physician if your current doctor gets bent out of shape and can offer no other option or reasonable reason to continue.

      Sometimes the risks outweigh the possible benefits.

      Best wishes.

      about 5 years ago
    • Marty64's Avatar
      Marty64

      Donna Eden is worth checking out! Here's a link. http://innersource.net/em/ Start with the 5 minute energy routine for which there's a video. Thanks for your advice.

      about 5 years ago
    • Cactus49's Avatar
      Cactus49

      Follow your instincts. You have some great tools to use instead. Sending you healing thoughts and best wishes. My motto for dealing with cancer, "living well is the best revenge"!

      about 5 years ago
    • Marty64's Avatar
      Marty64

      Thank you. I think I'll change my dr. There's one that practices at the hospital that is agreeable to integrative medicine. However, I've made vacations plans around my present schedule so hope that won't be another problem. Thanks for our help!

      about 5 years ago
    • BoiseB's Avatar
      BoiseB

      It looks like changing Dr,s is absolutely the best plan for you. Dr.s who practice integrative medicine should recognize how important vacation is to healing. Hopefully this Dr. can work around your vacation plans.

      about 5 years ago
    • MelanieIIB's Avatar
      MelanieIIB

      Her2 pos. cancer is a bit more aggressive than Her 2 neg. I had 3 spots of cancer, 2 were Her2 neg. and one was Her2 pos. The treatment I received was for the more aggressive Her2 pos. I received 6 treatments of Carboplatin and 6 of Taxotere (Docetaxel). I received 18 of Herceptin and Perjeta was not yet fully approved for routine use but I was on a trial for it where I either received the drug or a placebo.

      So the bottom line is that you have 3 more treatments of chemo. If your body is tolerating them well, I would probably continue them. Drink lots of water, eat lots of healthy protein. (They help your healthy cells rebuild.) To minimize neuropathy to my hands and feet, I placed them in ice during the infusion of Taxotere. (I wore thin socks and gloves so my feet and hands would not be so cold and covered the gloves with thin plastic gloves and bags over the socks so they would not get wet.) Also during the infusion of Taxotere I drank lots of water and sucked on ice chips to minimize mouth sores.

      As for the Herceptin and Perjeta, I know you have quite a few of those treatments left. I would strongly consider continuing them. They are usually tolerated well by most people receiving them. They specifically target Her2 pos. cancer cells, unlike chemo that targets all fast growing cells. They usually do not cause many side effects. Even though your surgery is thought to have gotten all the cancer, on a cellular level, you just can't be sure. For any drugs you receive, I would suggest keeping a daily log of any symptoms you have so that you can monitor your body and let your doctor know of any problems you are having.....anything from sore throat, mouth sores, etc. My medical oncologist was very good about wanting to help me with any side effect I was having.

      about 5 years ago
    • Marty64's Avatar
      Marty64

      Thank you so much for the advice. I do plan to talk with her and she has accommodated my vacation requests. There is another doctor who is considered more integrative on the team. I'm investigating! Thank you again!

      about 5 years ago
    • MelanieIIB's Avatar
      MelanieIIB

      It never hurts to investigate. Lots of times it will aid you in your decision by either confirming what you have already been told, going against what you've been told, or explaining something in a way that you better understand the thought and reason behind it. You are definitely doing right by asking questions. Let us know what you decide.

      about 5 years ago
    • Jouska's Avatar
      Jouska

      Do talk to your oncologist. I concur with MelanieIIB The HER2+ does complicate things a lot and is a genetic attribute of the cancer. Even if you don't want to continue the chemo, you may want to continue with the Herceptin and Perjeta. They are FAR less invasive than chemo. I did Herceptin for a total of a year as well as 6 rounds chemo and Perjeta and it was a walk in the park. I did the carboplatin and taxotere too - but I wanted a very aggressive approach.

      about 5 years ago
    • Jouska's Avatar
      Jouska

      To clarify, the Herceptin was a walk in the park. The carboplatin and taxotere not so much, but survivable. The other reason to discuss with your oncologist is other treatments can impact chemo and you need to know that, so the overall treatment plan can be understood.

      about 5 years ago

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