• I'm coming up on a year out from treatments being over, why does it feel like "it's not over"?

    Asked by hoosierboy on Tuesday, May 14, 2019

    I'm coming up on a year out from treatments being over, why does it feel like "it's not over"?

    I go for monthly checks, I've had one scan since, it was good, but I thought once I had that last treatment that it would be over, I'd go back to my life, that hasn't happened.

    5 Answers from the Community

    5 answers
    • JaneA's Avatar

      I am a 4 1/2 year Stage IV rectal cancer survivor. I still see my oncologist every 3 months for CEA and bloodwork. I still have scans every six months. I have been NED ever since my treatment ended, and I have good quality of life. But my oncologist wants to help ensure that I stay this way. So vigilance is critical.

      Cancer is, unfortunately, a sneaky snake. So it is prudent to follow the recommendations of our oncologists and the NCCN (National Comprehensive Cancer Network).

      It takes a while to learn to live a "full" life as a cancer survivor. I attempt to help others who face cancer. I am proactive about doing what I can do to help prevent a recurrence - I take high dose of Vitamin D3, a daily aspirin, and exercise. I limit my red meat and processed meat consumption.

      Best wishes to find peace of mind as a cancer survivor.

      5 months ago
    • BoiseB's Avatar

      Nine years ago I was diagnosed stage IV esophageal cancer. Stage IV cancer is not a death sentence but it is a life sentence. That means scans every year. Six years ago I got uterine cancer it was one of the more agressive kind. I thought after five years I could say Bye Bye to that cancer . Not so fast. I now have to have a MRI because something showed up on the scans that might be uterine cancer. I also got skin cancer last summer and at the six month check up, the Dr. found something suspicious I am awaiting the biopsy.
      I refer to my life as being in the 11th inning (waiting on results may be the 12th) Life for me is different but I am thankful for that life. I am still making plans for the future.
      Mark the date April 26, 2042. Everyone is invited to my 100th birthday

      5 months ago
    • medale's Avatar

      I was diagnosed with stage IIIC colon cancer with a partial colectomy followed by six months of FOLFOX ending October 2017. The scars and the numbness in my fingers/toes are a somewhat daily reminder. But I try to eat well, exercise, enjoy nature and live each day for the present it is.

      Today I walked in the same park where I restarted moving after surgery and during chemo. It was the same time of year and that really brought on some flashbacks. I found that meditation helps to feel better and is a powerful tool against anxiety.

      As a very wise woman told me: "None of us are making it out of here alive." Humor and not taking myself too seriously is also good but often hard to do. The other week I overheard one of the older gentlemen at the gym replying to a "good to see you" with "it's better to be seen than viewed." That still makes me chuckle.

      "Scanxiety" is very real (now every 6 months) and anything out of the ordinary does raise the heart rate. Also a little bit of survivor's guilt? But as time progresses the memories seem to recede. Hope you can find your peace as you move on in health!

      5 months ago

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