• I think they screwed up my expander when they put my port in

    Asked by ConniePT on Thursday, March 6, 2014

    I think they screwed up my expander when they put my port in

    I am almost 6 weeks post mastectomy, drains removed after 4 weeks and port was placed last Friday. I had major swelling over the weekend and had seromas drained Monday afternoon via ultrasound. I swear that my right expander has moved, down and over. It hurts like XXX and this is the port side. My port implantation was not a good experience it was horrible (another story, sorry) but could the idiot have cut the stitches that hold the t in place?

    I feel like a Numbskull asking but something is up and I hate whining.

    7 Answers from the Community

    7 answers
    • lilymadeline's Avatar
      lilymadeline

      I had a power port put in for my breast cancer, but I had not had a mastectomy first so I can't really compare my experience to yours. But honestly your experience sounds like a complete nightmare and I am so sorry that this happened to you! I've been in a breast cancer support group for 3.5 years and I have never heard of anything like this happening, so yes I do think that you are right and something could be wrong...maybe the surgeon messed up, maybe your body is rejecting the port...who knows but I hope that you find out. Please let your oncologist know this immediately and I would request and insist on an ultra sound as well asap to check the whole area. But honestly this is terrible and you are not whining! It only took them a few minutes to put in my port and I only had a little swelling at first, but after a few months I did end up going through a very bad time with my port because I got multiple infections and once I got blood clots they had to take it out. But usually they work well for most people. Good luck and god bless! xoxoxoxo

      over 7 years ago
    • ConniePT's Avatar
      ConniePT

      Thanks lilymadeline. I'm gonna call tomorrow...I did a little further reading about seromas creating a pocket that the expander can move around in. It just feels weird and hurts. I wish I knew a little more about the port before hand. I had a HORRIBLE nurse for the procedure and missed a great deal of information.

      over 7 years ago
    • lilymadeline's Avatar
      lilymadeline

      This really sounds just horrible! I hope that the swelling goes down quickly and that everything works out eventually with your port, it shouldn't feel weird and hurt this much and I hope that your oncologist can figure it out quickly, I would push for an ultrasound - there isn't any radiation or anything to worry about and it might show what is going on inside with your port. My ultrasound found the blood clots....hopefully this is the worse thing that will happen to you during your cancer treatments, or ever actually!

      over 7 years ago
    • Heather3's Avatar
      Heather3

      I had a similar situation when I had to have another surgery one week after my bilateral mastectomy to remove additional cancer under my nipple. Prior to the surgery I was healing well, but after the 2nd surgery I was in a terrible amount of pain. I could hardly move my upper body or lift my arm. It felt like my expander was out of place. I had frequent visits to the ps, ultra sounds, and aspirations. My doctors couldn't figure out was wrong other than that the tissue expander was fine. It wasn't until a month later when I was ninja wrestling a turkey for Thanksgiving that something gave. I think one of the stitches had snagged on something inside when they laid me out on the operating table.

      When you see your plastic surgeon, have him/ her numb the area by your expander so they can feel around to determine if it has moved. They can tell if it has shifted or flipped. I hope it is very simple solution for you. I know how painful it is for you. I feel for you..

      over 7 years ago
    • ecarroll6795's Avatar
      ecarroll6795

      where did you have your port put in?

      over 7 years ago
    • MLT's Avatar
      MLT

      Connie,
      You are really going thru so much right now. I didn't have any problems with my port, other than that area was always tender and still is even with it out. Hope you got in with your Dr. You had such a wonderful attitude before your Mx, I hope you are able to stay positive even tho so much is happening right now. Keep in touch with us.

      over 7 years ago
    • JudyDowell's Avatar
      JudyDowell

      My breast implant was completely flipped around, and still is. In other words, my right implant that they put in after the expander used to be fine, but after they put the port in on my left side, somehow, they dislodged my implant and it moved so the flatter side is outward instead of against my chest wall. Yea it hurts like XXX! I know for a fact that it is possible. If it's just the expander, they use them to stretch the skin before placing an implant in. They remove the expanders to place the implant in and can do some fancy stitching under the breast to hold it in place. Expanders in my opinion are painful. I remember as my surgeon was filling it, I stopped him because it was pressing against my lung! The skin was so fricken tight! I'm in remission thanks to sodium dichloroacetate or DCA. It cures breast cancer and you can see the human trials at www.thedcasite.com a professional site with resources, information on the human trials and successes! Lot's of hope there! I was diagnosed stage 4e mantle cell lymphoma in Feb. 2006. They said I had 6 to 8 months with or without chemo. I'm still here thanks to Na DCA. Sodium dichloroacetate. Get some. Get well! Eight years and healthy! Take control of your life. Good luck. You can use DCA with chemo. It causes the cancer cells to die a natural cell death. I am for real, my journey is documented at the DCA site. My name is judydowell. As for my implant, I'm living with the discomfort because I don't want surgery.

      over 7 years ago

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