• I've just been diagnosed with DCIS Stage 0 breast cancer and I am just a wreck that I can't make a clear decision.

    Asked by Patty on Monday, November 14, 2011

    I've just been diagnosed with DCIS Stage 0 breast cancer and I am just a wreck that I can't make a clear decision.

    My surgeon has recommended removal of my breast with the optional of removing both to cut my chances are breast cancer down to 0. I don't think I want reconstruction nor do I want to lose part of my body. But I want to live, and I know I must choose. Can anyone help, I am so scared and lost.

    24 Answers from the Community

    24 answers
    • NancyLee's Avatar

      Dear Patty...

      Your post is dated almost a year ago. Hopefully by this time you have decided what to do about a mastectomy, and are healing now.

      I was diagnosed with DCIS, state 0 about six months ago. Even though my tumor was on the large size, my surgeon didn't hesitate about recommending a lumpectomy. He did mention If I had chosen a masectomy I wouldn't need further treatment, though. The operation was fast (only 1/2 hour long!), but had seven weeks of daily radiation radiation ahead, in another town.
      Few side effects, and I chose no follow up hormonal therapy.

      I'm not sure why your surgeon would recommend such a drastic move for DCIS, stage 0. Have you had breast cancer before? You must have a cancer history in the family? I know women who have chosen more radical surgery just because they don't want to WORRY about it coming back, and they have reason to worry. If you are still unsure, I'd get a second opinion. The good news is that reconstructive surgery has come a long way, and may not be as bad as you fear.

      I send my very best healing wishes to you, and hope that it has been resolved, with you back on the road to recovery.

      With love,


      over 8 years ago
    • Diana60's Avatar

      I am in the same position right now and am headed for a lumpectomy on Nov. 12. I was told that it was so small an area that was all that was needed. I have inside radiation right after the surgery and hopefully will be able to avoid the 5 to 7 weeks of radiation. But I have been told that I will need tomoxifen for 5 years.
      I /would like to know what you did do?

      over 8 years ago
    • Momofivedcisbc's Avatar

      I wish I was here a year ago. I am wondering how you are doing a year later. Stage 0 is still breast cancer. It is hard to make a decision when so much is unknown. I hope you have found a balance and a sense of peace. Text or e-mail if I can be of assistance.

      over 8 years ago

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