• I was reading the pet peeves blog and not sure where to respond.

    Asked by Beaner54 on Tuesday, April 18, 2017

    I was reading the pet peeves blog and not sure where to respond.

    Just wanted to add mine... it is the seemingly "lessened" medical care and/or attention given after reaching their statistical 5 yr mark. Do the residual effects from initial treatment not matter? I have been battling bowel incontinence for over a year and have yet to find a solution.

    8 Answers from the Community

    8 answers
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I agree, Beaner. I'm not quite there yet, but August isn't that far away. And no doctor has mentioned any kind of survivorship plan.

      about 3 years ago
    • geekling's Avatar
      geekling

      That is a toughie.

      There are things you can try.

      1. Kegel exercises

      2. A product called "femtones" which are basic weights to help you get into shape for Kegel exercises

      3. Include a little fermented food in your food intake. This can be anything from raw saeurkraut to pickles fermented in brine (make sure there isnt sugar in the ingredients..with sugar is a quick pickle which isnt truly fermented despite the taste) to miso, kimchee and beyond.

      4. If you have allergies, try to avoid the allergens.

      I have deep empathy for you.

      Best wishes

      about 3 years ago
    • BoiseB's Avatar
      BoiseB

      One of my cancers is stage IV so my Dr.s say I will have to have a CT-scan once a year for the rest of my life. My PCP likes to see all her patients who have had cancer for a full physical twice a year. Also keep current on all other screenings.

      about 3 years ago
    • GregP_WN's Avatar
      GregP_WN

      At the bottom of that blog post is a place for comments. You can add them there, here is a link to the blog post, then scroll to the bottom. https://www.whatnext.com/blog/posts/cancer-related-pet-peeves

      about 3 years ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Beaner54, have you already consulted a proctologist? We can not leave it up to just our onchologists to follow through on medical care that may or may not be related to our initial treatment. If you get no satisfaction from one doctor, take the bull by the horns and seek another. You deserve better.

      about 3 years ago
    • Beaner54's Avatar
      Beaner54

      Lynne, I have not seen a proctologist but do see a colorectal surgeon every 6 months and contact him in between when needed. Is there a significant difference in the two? I was diagnosed with Stage 2 colon cancer in 2012 ... 8 months after the uterine cancer diagnosis and surgery. Had hemi-colectomy but did not need adjuvant treatment like after my uterine surgery
      .
      I see a medical oncologist, Gyn oncologist, primary doctor and an Endocrinologist for hyperthyroidism. Also was under short term care with a thoracic surgeon after lung surgery to remove a malignant nodule (uterine cancer had metastasized.)

      So there are lots of blocks on my calendar filled with follow up app'ts.
      LOL but there are lots of players on my team - but seemingly no coach. and that takes me
      back to the "pet peeve blog". :) Thanks for listening

      about 3 years ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      No, there is not a difference between the two. Proctologists was the name given to doctors who dealt with issues of the anus, rectum, and bowel in my day ( guess I am showing my age ). I found out they refer to them as colorectal surgeons nowadays. But, that does not mean you can not get a second opinion if your present doctor is unable to help your condition. Perhaps this is something that will be chronic but a second or third opinion may give you hope and a resolving of the issue.

      about 3 years ago
    • MsMope's Avatar
      MsMope

      Hi! I saw your question in the What Next Digest a few days ago, but thought I had nothing to say that might help. Then I kept thinking about your question. I'm three years out after upsc, seeing a gyn and my oncologist every 6 months for cancer follow-up. But I found I had a lot of little issues going on after the hysterectomy, chemo and vaginal radiation. I would always advise to see a primary provider because they're supposed to see all of you, not just the cancer bits. I see you have thyroid troubles. I was diagnosed with HYPOthyroidism (Hashimoto's) after chemo and was put on thyroid hormone. The dose went up and up per labs. And then I was taken off the hormone because the labs were off - too much hormone. Man oh man! After the hormone was taken away, I could see how EVERYTHING was sped up by being HYPERthyroid. My bowels ran real fast and loose. I thought it was just the hysterectomy, the vaginal radiation, chemo etc. BUT IT WAS THE thyroid medication and being HYPERthyroid that was making me quick and loose. I even pee slower now! Who knew? Previously, I had checked with my doctors and they all said it's fine to take loperamide OTC every few days to slow things down. I took the OTC dose two times a week when I was running fast and loose (and running to get to the toilet in time). I hope you find a solution. Lynne-I-Am's advice to get a second opinion is also very good. I hope you feel better soon. Running fast isn't fun! -mm

      about 3 years ago

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