• maf's Avatar

    I wish I knew the life expectancy of someone diagnosed with Adrenal Cortical Cancer. There's not much known about it, but I wish I knew??

    Asked by maf on Friday, August 17, 2012

    I wish I knew the life expectancy of someone diagnosed with Adrenal Cortical Cancer. There's not much known about it, but I wish I knew??

    8 Answers from the Community

    8 answers
    • nancyjac's Avatar

      The thing about statistics is that for most of us they are totally useless. An individual's life expectancy can be 1 minute, whether or not they have cancer. In one minute, you can die from being run over by a bus and a hundred other ways. The only thing useful about life expectancy is so actuaries can charge you for insurance premiums.

      about 4 years ago
    • po18guy's Avatar

      You are in the process of forming your own survival curve. No statistic pertains to you. nancyjac is 100% correct: before tomorrow becomes a problem, you first have to wake up tomorrow. In my case, I began four years ago with a poor prognosis. When I relapsed immediately after four months of aggressive chemo, my prognosis dropped to very poor. Yet, here i am four years later with no evidence of disease for over three years now. Each of our situations is dynamic and what is meaningful today will be discarded tomorrow, as things have changed.

      This type of cancer is one in which it can be vitally important to obtain a second opinion on both diagnosis and treatment. I would strongly advise you to seek out a large, regional cancer research/treatment facility - one with substantial experience in combatting this disease. I think UP has one of the best centers in Pennsylvania, if I remember correctly.

      On the positive side, the prognosis and survival rates of the rare, T-Cell non-Hodgkin's Lymphoma I ghad seem to be quite similar to yours. Yet, I am here at four years later with no evidence of disease. i partook of a clinical trial, which is the only reason that I am here. Please ask doctor about clinical trials and do not be afraid to consider participating in one.

      about 4 years ago
    • outdoorboywa's Avatar

      I have experienced the "I wish I knew" for myself and others on a number of occasions. I think most of us here can relate to the desire to have some kind of understanding about what is ahead. It seems that looking for answers in the future is a waste of energy that takes us out of the present. Energy is better spent learning to be comfortable with the ambiguities of life than fighting to know the unknowable.
      I agree with both of the previous posts. Lance Armstrong in "It's not about the bike" basically says it is unfair to use statistics like that for the prognosis of any patient. Deepak Chopra goes further and talks about the nocebo effect. Which basically says if you believe in a longevity of 2 years, you will die in 2 years, even if they made a mistake in the prognosis and they should have told you 5 years. Listen to doctors when they are talking about relative benefits and costs of any treatment appropriate for your cancer but don't listen if they tell you your chances for dying or how long you are likely to live. Believing in their prognosis is likely to shorten your life. Say the chance of living 5 years post treatment for someone at a given stage of a given disease is 20 80, who is to say whether you are in the 20 or the 80? The doctor doesn't know. They don't know why some people react better to treatment or why a few have spontaneous remission. What determines whether you are in the 20 or 80 may be what you choose to believe. Take care of your affairs as though you would die in a weeks time, and plan to live your life like you will live to 105. Every day, fill it full of good relationships and things that you find enriching, as today is the only day you have. Go for quality.

      about 4 years ago
    • TheEvilyn8's Avatar

      MAF, each person is different, each cancer is different...How long do you want to live? Ask yourself that and live each day that way. You must take hold of the ladder and take a step each day, although your goal is still far away...you can do this...One step at a time. Fight's On!

      about 4 years ago
    • holmstr5's Avatar

      My wife has the same kind of caner. She is receiving great care at the University of Michigan. They have a whole program dedicated to treatment and research of adrenal cancer. They said they treat half of the adrenal cancer patients in the world there. We recomend checking into it. They also offer remote second opinions.

      about 4 years ago
    • Peroll's Avatar

      Any caner stastistic you find is at least 5 years old because the cancer community considers anyone that survives 5 years or longer with out reoccurance as cured. I can tell you from my own experience that I have hit the 5% part of the stastic at least 5 times in a row. I like to tell eople that stastically speaking I am dead because of this. I work with stastics professionally and can tell you that it is best to just not pay attention every situation is different and will defy the stastics in some manner.

      about 4 years ago
    • JamesMom's Avatar

      I have been listening to Dr. Dwayne Dyer every night - he is a psychologist, writing, speaker and he works with Deepak Chopra on the issue of holistic living, healing, thinking, and all the intangibles that go with joy in life. Please try to check out one of his books online (listening helps me fall asleep each night). I believe in the power of intention, excellent nutrition, exercise, and joy. These, combined with outstanding medical care, may help you move past the question of life expectancy and move into the realm of "life". I hope you have a support network in your community, family, friends. If not, this one seems like a good place to be. Lisa, James' Mom.

      about 4 years ago
    • webean03's Avatar

      I was diagnosed with Adrenal Cortical Carcinoma in 1997. There is not much known about it. I was told I am a miracle? Not sure how or why. I sure don’t feel right though….I believe that if you were born with 2 organs and have one removed, it should be supplemented with something??? I cannot handle stress at all….it wipes me right out:(

      almost 4 years ago

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