• I would like to hear from the men that had prostatechtomy and that are living cancer free with no incontinence or ED. Is it a false hope?

    Asked by ROBERT on Sunday, February 3, 2013

    I would like to hear from the men that had prostatechtomy and that are living cancer free with no incontinence or ED. Is it a false hope?

    7 Answers from the Community

    7 answers
    • tomget's Avatar

      That's a good question..I'd like to see the numbers too, because I recently had the prostatectomy myself. I wish we had a national data base regarding treatments like this..so we could all learn about the real "success" or "failures" of medical treatments based on "big" numbers. It would help me make better decisions as a medical consumer.

      Not just prostrate cancer, but that's of most interest to me of course. I guess in some socialized type medical systems where the government health system provides the procedures they might have some data on this, but I guess? in our country as it is today "patient privacy concerns" and or doctors "liability concerns" and other things I suppose don't seem to make that as available as I'd like to see. Maybe someone can correct me if I'm wrong about this.

      When I see answers to this question here..I wonder..how meaningful it is because sometimes the outspoken are either disappointed at how bad it turned out for them, or pleased that they did so well. But what about everybody else..the peeps no longer here at this site because they don't fit either group and have just moved on. What were their results?

      over 3 years ago
    • mgm48's Avatar

      NO!!! I did it for 5 years post surgery. The recurrence has changed things on the ED front but in all other ways I'm fully functional. Wishing you the best.

      Keep it positive and smile:)

      over 3 years ago
    • Ross' Avatar

      Maybe not. In my case, I'm on hormones so ed is a fact of life. Not so with incontinence. I was able to deal with that not long after my surgery. I think the exercises helped a lot. Hang in and work for small improvements day today. Best wishes. A survivor, Ross

      over 3 years ago
    • WizardOfWesley's Avatar

      Hey Robert... Good afternoon... I actually answered your question this morning... but he Batt. died on my phone and I lost it..;-(
      Well here goes try number two... I was 100 % continent about a month or so after my surgery... My PSA was undetectable up in till four or so months after Robotic Surgery (Dr. V.Patel) Global Robotic Institute, Celebration Florida. .. As far as ED issues.. I was told that nerve sparing surgery was preformed.... at about three months out.. I was starting to regain some sense of an erection or so I thought. I had a very high libido prior to my surgery and at age 59.5 did not need Viagra... to perform .. I will be honest and say I used Viagra to preform like I was still Twenty... four or five times a night with the blue pill ... right up to the night before my surgery... Yes It worked that well..;-) But at the four month mark my PSA started to rise slightly... I decided not to go back to Dr. Patel and went directly to Moffitt in Tampa.. and started salvage radiation or the prostate bed.. at about the seven month after surgery... I was still 100 % continent.. and remained that way thru the radiation treatment process. Can't say the same about my colon... not a happy camper in that Dept. but nothing that could not be controlled with Lomotil Let's roll the clock to today.. Just one year after the radiation my PSA still seems to be halving and going in the right direction... as far as ED.. well.. I'm still alive so with Life that is hope... I had stopped using the VED device when I started radiation .. so that could be a contributing factor.. I belong to a private/secret group on FB... Prostate Cancer Men's Support there are currently 125 members.. most of which are experiencing ED issues... some have over come them with injections, or MUSE suppositories.. but that's the truth about this.. I do know of one man that had the open surgery .. about 15 years ago.. and according to him.. he's 78 now he is doing just fine... (I was in the process of buying a house from him when I was diagnosed) It's almost three years since then... and he is still going strong ..?? so Hey you never know... Keep the faith.... getting back to incontinence .. I would say I'm at 99.9 % good.. I do not wake up in the middle of the night.. but a hard cough or being hugged to tightly from my GF .. and feeling a sexual urge.. seems to relax my bladder control and I might leak a drop... I hope that is not TMI Just the more info we all share (cause the Dr.s don't) the better off we all will be.. Feel free to Friend me on FB and you can join the support page... It has been very helpful... and a life saver when you are thinking I am the only one... :-) ... Good Luck.. G-d's Speed with your recovery..
      Larry TheWizard Siegfried... http://www.facebook.com/groups/218375378219873/members/

      over 3 years ago
    • ROBERT's Avatar

      Thanks to all for the useful information. I think you are correct Tom when you say that the ones that turn out great move on and the ones still looking for answers remain here in search of more. My doctor gave me very good odds for a full recovery and I have been told by friends of so many men that have been cured but I am yet to hear direct confirmation from the men our there. The good news is that through the support here I see that no matter the outcome we all survive and thrive and deal and go forward o there is little effert waisted in sorry. And Wes the information is never too much but seams never enough. i know you all wish me well for my first after surgery doctor visit tomorrow. thanks to you all.

      over 3 years ago
    • TallBald's Avatar

      I would like to see stats by age group. I am younger, so am hoping that this is in my favor, but the only stats I see for ED is 1 to 2 years to recover. Ee gads!

      over 3 years ago
    • jDay's Avatar

      At age 59, I had nerve-sparing robotic prostatectomy on 3/5/13. Now wearing 1 or 2 pads per day and have ED. psa is non-detectable, bur dr, tells me ED will be an issue for 2 years. Time will tell, I guess.

      about 3 years ago

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