• I131 radiation

    Asked by thomasmyrtle23 on Thursday, May 16, 2013

    I131 radiation

    Anyone had this??

    4 Answers from the Community

    4 answers
    • Tracy's Avatar

      Yes, I have had this twice. It is the standard treatment now for thyroid cancer (and other thyroid issues). It is a small bottle of what looks like water (radioactive iodine) that you drink and go home with instructions. The main thing to be aware of with this is to have very sour lemon to keep your saliva glands active while it is working. My saliva glands were badly burned the first time since it was during the early days of this treatment and it was not yet understood. You will get many people on this site who have had this treatment as well.
      If you have questions or want to talk, Greg has my email and permission to pass it to you. Tracy

      over 5 years ago
    • jollymon's Avatar

      I had it too, just go strictly by the diet to avoid foods that contain iodine and it will be successful. My Dr. said she had never seen iodine levels to low as mine were before taking I131. I only had it once, then had two Thyroid scans and I am totally free of thyroid tissue. So take that diet very seriously, there is a great download online to help with recipes and make that I131 do it's job. By the way, mine was in a small blue capsule, not liquid. Be prepared with the paper plates and such, scoot all pets out of the house as those guys are in harms way from the radiation too.

      over 5 years ago
    • Carolina18's Avatar

      Like your other two answers, I, too, have had the I-131 treatment. Not sure where you are going for your treatment, but my I-131 was in liquid form. Has no taste. Do what it takes to get it done. Greg also has my e-mail and has permission to pass it on. From one Okie to another, you can do this. Be sure the doctors you are seeing have treated this disease many times. All doctors treating this disease ARE NOT this same. Also, if you are doing this treatment, make sure you get the Thyrogen injections which make is unnecessary to withdraw from your meds. Best regards.

      over 5 years ago
    • toverway's Avatar

      hello, i just had my 131 done and mine was 2 pills, listen to everyone except for the paper plates my doctor told me to use regular dishes just wash them apart from everyone else. I just had my body scan done the 15th and my scan's came back great cancer is gone. this is after i had 2 surgeries.. God Bless you and im here if you want to chat....take care yvonne

      over 5 years ago

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