• IDC vs IDC-L

    Asked by Nancebeth on Thursday, January 10, 2013

    IDC vs IDC-L

    I have been some issues gastro-intestinally lately, so I went to my PCP and had an ultrasound and blood work. My liver is slightly enlarged but otherwise everything looked fine. He referred me to a GI Specialist and I will see him next week. So in anticipation of this visit, I got my surgery path report from my bilateral mastectomy and my reports from my cancer center for all my visits and what meds I took, in addition to my chemo and all the doses. The path from my biopsy showed iDC, the path from the surgery showed IDC with Lobular features, or IDC-L. I have done some research and the treatments for these seem to be the same.
    Has anyone else discovered after their treatment that their cancer was not exactly as you thuoght it was? And would it have changed your course of action?

    3 Answers from the Community

    • nancyjac's Avatar

      It is probable that no two tissue samples will look exactly alike under the microscope unless they were taken at the exact same time and the exact same location. Not all cells in a tissue sample are cancerous and among those that are they can still be different from each other. I had 2 different biopsies at different times and different locations to confirm that my cancer was inflammatory breast cancer. IDC and IDC-L are not really different cancers, more like just a minor variant within the same cancer, like a high vs. a low ER positive for example.

      almost 4 years ago
    • karen1956's Avatar

      My BC was mostly ILC, but I think there was some IDC components...I had biopsies on two different dates that tested 3 different places plus the lymph nodes....all were positive for BC...and its possible that the samples were all different...prior to bilat, I was stage 2, after bilat stage 3.....Since I was treated aggressively, to me it doesn't matter....and I don't know if the chemos are different for ILC and IDC....

      almost 4 years ago
    • Peroll's Avatar

      i think anybody that has had a recurrance at some point begins to seciond guess the treatment and wonder if something else should have been done. While I do it, I think of it as most;ly a waste of time as you and your Drs did what was thought to be right based on what you knew at the time. Hindsight is 20/20 and with more information things might have changed. While cancer professionals need to look and see if they should have done things differently based on the data they had, this is to better treatment for future patients not us. We need to focus on current and future gtreatments not past. As far as I know time travel has not been invented but when it is I will be the forst to want to go back and correct my mistakes. Good Luck.

      almost 4 years ago

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