• If u have stage 2colon rectum cancer low in the rectum, do u always have to have a bag?

    Asked by cabokimi on Monday, March 19, 2012

    If u have stage 2colon rectum cancer low in the rectum, do u always have to have a bag?

    4 Answers from the Community

    4 answers
    • CarolLHRN's Avatar

      I have rectal cancer and my tumor was 4 mm above my anal sphincter. My surgeon was able to remove the tumor and the part of my rectum that the tumor was in and construct a J-Pouch from my colon. I have a temporary ileostomy while my colon heals. If the tumor is far enough away from the sphincter, you don't have to have a permanent bag. I'm not sure how familiar you are with your anatomy there but the sphincter is what holds the stool in your colon until you want to go to the bathroom.

      The J-pouch surgery builds a little pouch to take the place of the rectum. Patients usually have to move their bowels about 4 times a day but you do not have to have a colostomy permanently.

      If you do have to have a colostomy, it's not as bad as it first seems. I couldn't believe I had to have an ileostomy, even temporary. I had no idea how I was going to live my busy lifestyle. To be honest, I forget half the time that I have it and I can do all of my normal activities. You just have to have a good attitude about it.

      Be sure to talk with your doctor about your options and get a second opinion if necessary. There are still a lot of doctors that are still making a huge incision, taking out the rectum and giving patients colostomies. I have a very small incision from my surgery (like a C-Section) and a couple little scars from where they inserted the instruments. I'm not sure where you live but you may need to go to a larger hospital to have this type of surgery.

      There is a lot of information on the internet about the J-Pouch. I just want to warn you that some of the support sites are depressing. I have come to the conclusion that the patients that are doing really well with it don't need to be in a support group and are living life to the fullest and don't have time to be on sites. The sites are full of complainers and people that didn't do well. I had the chance to speak to 4 patients my surgeon worked with and they are all very happy with the outcome and don't give it a second thought.

      Good luck in your journey and let us know how you are doing and what decisions you have had to make. There are several of us with colonrectal cancer going through chemo together right now and we can all share our stories and experiences with you.

      over 4 years ago
    • cldunn5's Avatar

      It is important that your surgeon is a board certified colon and rectal surgeon. You will get the latest treatment options and get the most experienced surgeon because that is all that they do. You can obtain a doctor in your area by going to http://www.fascrs.org/patients/find_surgeon/ there is also a lot of information on this website (www.fascrs.org) that may help answer your questions. Best of luck to you

      over 4 years ago
    • AngieJ's Avatar

      Hi ,your Dr should be able to answer the question if colostomy will be permanent .I have stage IV rectal cancer one of tumors
      IRS was approx. 4" from the anus , 2nd one up a few" higher .I had both removed one of them was pushing /attaching to the pelvic floor/wall I do have a prmt colostomy & it has been painful from the start .fiber caused some of the pain. I had tearing in uterus vaginal wall with a lot of bleeding during surgery .
      Stayed on low fiber diet & have gradually increased fiber .my surgery was in July & was hospitalized 28 days the surgery was over 6 hrs .the tumor wasn't the typical adenocarcinoma ,but squamous cell very lg ,grapefruit size on palpitation ,lemon sized by the time it wad removed .2nd tumor smaller .I admit it has been difficult due to pain ,but it is going better with time but very sensitive .if you hubby wants to file for disability & try to enjoy his time I say let him do that & you go back to working we never know for sure how long we have on earth ?I just won my disability ,I had originally applied 4 yrs ago with advanced arthritis ,bulging disc,fibromyalgia & bulging drop among other things then with the cancer . The disability was approved from day 1 4 yrs ago .trying to enjoy ;I am in Naples Fl for a mnth & loving it .stay strong if he needs your time he will let you know .I joined Gildas Club &so had my hubby & my mom,it has been a greAt positive exp. To connect with others with cancer.hang in there & keep us updated.Angie

      over 4 years ago
    • AngieJ's Avatar

      Support group @ Gildas Club is great ,We share positive & negative experiences . Its all about providing a place to relax & share .in my group there are cancer survivors one of them it's been 8 yrs since diagnosed ,there ate others 3,4 & five yrs clear.everyone has an opinion on support groups .I enjoy the positive experience with Gildas Club .I. Have met others with a variety of cancers & their experience,I have shared & have found a lot of comfort with my diagnosis .Gildas Club has provided a great deal of activities ex; Shrine Circus with 2 of our grandkids,play @ theater,a special couples valentine date/supper .every Tues. A full meal ,then groups meet ,there are diff.groups for diff members .there is something for everyone ,if it's in area give it a try .

      over 4 years ago

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