• KarenG_WN's Avatar

    If you are dealing with childhood cancer, what do you most wish others knew about what you are going through and how to best support you?

    Asked by KarenG_WN on Wednesday, September 12, 2012

    If you are dealing with childhood cancer, what do you most wish others knew about what you are going through and how to best support you?

    6 Answers from the Community

    6 answers
    • 1Survivor4life's Avatar

      If I was a kid when I got sick I would want people to treat me like a kid instead of a sick person. I would want to play and have fun and sometimes I might not be fun to be around and that's whne you leave me alone.

      about 4 years ago
    • Tracy's Avatar

      Talk to the child as you would an adult. I had it as a teenager and my experience made me mature emotionally much faster than other kids around me. I didn't like the fact that I was not being talked to about what was going on.

      about 4 years ago
    • sleahey07's Avatar

      I was diagnosed with Melanoma at the age of twelve. I wanted to know the truth about everything. I didn't like the doctors and my parents to sugar-coat anything. Being a kid has it's disadvantages because your parents are still making decisions for you.

      I wanted to hear the truth because it was about my life. I didn't want to be treated like a sick child but I still wanted to be a twelve year old girl. Being diagnosed at that age makes you grow up a lot faster and miss a lot of experiences that kids that age get. I guess what I am trying to say is that I wanted to be treated like an adult when making decisions about my cancer, but outside the hospital setting, I wanted to be someone my age.

      about 4 years ago
    • kmarquis' Avatar

      I think the times I appreciated my friends the most was when they asked me directly what they wanted to know about my being sick. Will you be able to come to school? Will your hair fall out? can I catch it? instead of people tiptoeing around the issue and treating you differently because they don't know the answers to these questions. These answers were even ones my Mom had to share with the parents of my friends in some cases.

      But I agree with all of the comments below. You can still treat your child like a child without hiding the facts of the diagnosis and treatment from them. Kids are sharp, especially these days! :) And I have many happy childhood memories from during the time of my treatment, largely because my friends and family treated me like me instead of like cancer girl. :D

      about 4 years ago
    • JamesMom's Avatar

      I'll third or fourth these communications... my 10 year old son, who was diagnosed at 9 years old, is much more mature intellectually than my 12 year old. He is very smart and knowledgeable and wants to know what's happening. We don't sugarcoat things; we tell the truth always and never try to make it better than it is. However, we don't usually blurt out fuzzy statistics, either. We just take things one day and a time, which helps not only James but our entire family.

      about 4 years ago
    • Modern's Avatar

      I don't know if I count cause I had just finished highschool like a week before i was diagnosed. And to be honest I wished I could just get all the people I hung out with and saw regularly and could say change the subject I'm not just a girl with Vance I'm your video game loving book reading walking book of useless information I always was so here's the deal there will be good bad and hopefully two weeks In between so just let me be normal k. But most my friends don't vist so I guess it wouldn't matter lol :')

      about 4 years ago

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